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#MEAction Network UK Aug 16
Replying to @MEActNetUK
Read more about Gigi's story below and please share far and wide!
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Carole Bruce Aug 15
Could this have any link to ? Scientists discover new pain-sensing organ
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Tony Britton Aug 18
'How My Pastor's Words Changed the Way I View My Condition' | Yahoo Lifestyle | 17 August 2019:
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SolveMECFSInitiative Aug 13
Myalgic encephalomyelitis (ME) is a complex condition that affects up to 250,000 people in Australia, a quarter of whom are bed bound. But there is new hope for sufferers with the creation of Australia’s first biobank and registry.
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HealingCFSME Aug 17
Doctor’s quote about the tiredness of CFS and ME # MEawarenesshour
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Equality Couple 20h
Replying to @ravensspirit68
Is the the new term for ? I vaguely remember someone talking about it. My brain fog is bad this morning.
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Shelby Rallis Aug 16
Replying to @NINDSdirector
Respectfully, you have no idea how hurtful this article is to Where is the increased funding Collins promised for ? Where is his voice of support when articles like those in Reuter’s and Psychology Today directly contradict science? 😰
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Tom Kindlon 13h
My new blog post: "Should donating to ME/CFS research be left to millionaire sufferers and ex-sufferers? I'm not convinced"
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Lene Christiansen Aug 17
Replying to @LeneCch
Are we seing another Hansen case in the UK right now..? Basic human rights violated. Taking pain meds from a patient in excrutiating pain. I really hope other doctors will speak up now. We need it. And science is on our side.
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Den ⏳ Aug 11
You are not a ME activist if this guy did not block you.
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Katherine T Owen 17h
FREE ebook. The emotions of living with chronic illness The author lives with
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Megan Jayne Shepherd🌿 20h
"Learning to accept the way things were brought me peace of mind. It allowed me to find ways to live well within my capabilities."
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Its ME Matina Aug 16
Replying to @esteckler2 @RyanMarino
Waste of money to screen for something that everyone doesn’t do that’s the point! First learn to diagnoses and treat . Most docs don’t! Don’t need a screen for substance! 🤦‍♀️
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#MillionsMissingDenmark Aug 18
Hansens doctor Stig Gerdes vs. The Danish Patient Safety Authority (tomorrow) Gerdes wants his license back. Atm no doctors dare to see ME patients in DK. Info here: Look for Chapter One + this picture (text from 17/7):
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Lene Christiansen Aug 17
Replying to @LeneCch
Danish Patient Safety Authority. They took Dr Gerdes license. So he could no longer practice. Had to close his clinic. In 2016 that was a clear message to any doctor in Denmark: is a mental disorder. Stay away. Or we will shut you down.
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HealingCFSME Aug 17
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Arianne Grand Aug 17
Replying to @ravensspirit68
Before the advent of the MRI, Multiple Sclerosis was called 'hysterical paralysis'. More are losing their lives and ability to function every day due to M.E. every day, and being told it's all in our heads.
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Arianne Grand Aug 17
Replying to @ravensspirit68
When we seek help, we're both physically & emotionally abused by being turned away by medical professionals. We're told to get more exercise, be more positive, maybe get some counseling and start on SRIs. Because after all, the basic blood panel 'looked good'.
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Arianne Grand Aug 17
Replying to @ravensspirit68
These are some of the daily symptoms I and others with M.E. experience. Every move, every thing I decide to do, actually makes them worse. Uncontrolled pain has made it all worse too.
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Tom Kindlon Aug 17
JAMA is one of the leading medical journals in the world. This article has now over 74,000 views "Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony L. Komaroff
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