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CFS is not M.E. Sep 25
My profile statment: "M.E. should ONLY be called M.E. thereby preventing the unethical exploitation of patients by medics who deny M.E. exists." Agree? Disagree? It's time to sort out this basic issue.
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supportinginvestinme May 24
Replying to @arisonned
Merryn is also featured. She sadly passed away last year. Her family continues to do fantastic
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AfterExtraTimeShirts May 2
If you do one thing today, some awareness of from and then once you've read it, check out her Etsy. Some awesome paintings for sale, mostly football related ❤
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A Journey Through the Fog Sep 24
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A Journey Through the Fog Sep 24
“Not only are our symptoms dismissed by doctors, sometimes for years, but even after diagnosis we face scepticism, ignorance and dangerous treatment practices. This neglect is causing us harm. This has to change”
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Nicola Jeffery May 17
This has made me feel really happy, especially after such a hard crash of PEM over the last 96 hrs campaigning for . Because even if it's just a day, week or month, of different campaigns calling for awareness, this shows IMO we are ALL gradually being heard...
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MillionsMissingNL May 12
Sun has gone down here in Europe....And now we see blue appearing everywhere. Which landmarks do you see that light up blue for ? Send us a pic! this is the big wheel in IconPark, Orlando. Beautyfull!!!
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Rachel Ephgrave May 15
On Saturday I attended Gloucester for three hours using my wheelchair. I have not left the house since. The payback from such simple activities is a defining feature of . Great article here from . via
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Saturnation (genetic snowflake) May 10
Seeing all this good awareness work around ME is hitting me in the wrong way. I'm very thankful for all that everyone is doing, but it's reminding just how much I've lost so quickly in 2 years after coping for 35+ years. Thanks, but I can't join in this year.
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It's M.E. Linda Apr 4
Brilliant tweet and replies: Particularly like 's "raising awareness, one tweet at a time"
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Jenny Tips for ME 🥄 May 8
appears to spring up each May, but in reality staff and volunteers are working away at advocacy all year round If you’re impressed by resources please consider giving what you can afford to keep this going and improving
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Sophie 🎃👻😈 May 1
It’s month so I thought I’d tell you all about my experience with ME. I got glandular fever when I was 16 and never recovered. 12 years later my health hasn’t improved. In those 12 years there hasn’t been a single day when I’m not exhausted and in pain.
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ME North East May 7
This is a cry for help to all those who know and understand the importance of help and support to people with ME. After 20 years and helping over 2000 people of all ages, we now face closure.
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Steve Walden Apr 7
So appreciated, so much more needed! RT : Brother-in-law running today! Raising money for . His 1st marathon so no doubt a little nervous! He’s done a fab job of raising funds & .
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Sarah Richardson May 12
Replying to @cnnhealth
Thankyou so much for covering this on day. People all around the world are desperate for help and research, it would be so wonderful if more researchers could come onboard and help the get better so they can really live and not just exist
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a time being 🏳️‍🌈🌍♿️ May 8
“May probably doesn’t see the irony that, during ME Action Network’s campaign week, she effectively ignored the hundreds of thousands of chronically ill people missing from the welfare system. She may as well have thrown them under the nearest bus.”
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Dan Wyke Sep 14
Since med schools are still failing to teach GPs about ME, I'm sending one item of research or publication on ME every month to all the GPs at my surgery. Got a good list of things but recommendations welcome. Next month: ICC primer. 😁
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The M.E. Trust Sep 25
Our Charity Administrator, Helen, and sons organised their own garden festival to raise awareness and funds for our service, where talented local young musicians performed an eclectic mix of music and a fantastic time was had by all.
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jaci Mac 8h
I certainly applaud the contribution makes to the morbidity of the disease, it seems we need to have more dialogue with big charities like over how much of donor’s money is spent on what. Research is key to recovery, but so are early awareness pamphlets
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Dan Wyke Oct 11
"I have lived like an elderly person way before my time. Having just reached the age of 65, it has now become a harsh reality that most healthy 90 year olds could trot circles around me."
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