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Sten Helmfrid Aug 11
TEST: Find the circular reasoning in the statements below. is not a real illness, because we haven’t unveiled the underlying processes. We haven’t unveiled the processes, because we haven’t done enough research. We don’t fund research, because is not a real illness.
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Simon McGrath #mecfs Aug 5
A patient petition and years of activism and involvement in Holland has led to a momentous result: €25 million for research. Congratulations to all.
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ME Research UK 1h
Post-exertional malaise (PEM) (one of the hallmark symptoms of ME/CFS) can vary between individuals, so researchers in France recently attempted to identify factors which are associated with more severe PEM Read more:
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#MEAction Network UK 7m
Let’s do this! Please keep sharing online and offline to help sign up as many people with ME as possible to the DecodeME study to make sure they get the 20,000 samples we need - a huge challenge!
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Jennifer Brea🦒 Aug 5
“Doctors are firing their patients and asking them not to return. Spouses don’t believe that their partners can be sick for so long, and end the relationship. Family and friends have been distant and alienating.”
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Chris Ponting @🏡 Aug 11
Masters’ students – Want to discover molecular markers of ME/CFS? 3yr post in Valencia available with secondment to Morten group, Oxford.
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Cort Johnson 23h
Has Lost Its Way? MEAction has done some of its best work ever lately - but what to say about an advocacy organization which didn't show up for the biggest advocacy effort in decades? Something has gone wrong
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Solve ME/CFS Initiative 7m
Infographic: What is ME/CFS? Included in the link are the diagnostic criteria for the disease, according to the National Academy of Medicine.
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DecodeME 3h
🧬It’s just a few weeks until funding for kicks in and the project officially begins. 🧬Keep sharing online and offline to help us sign up as many people with M.E. as we can to the study 👉
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Paul Carter Aug 6
Before you judge my illness you need to walk a mile in my shoes ... but first I'll need to find them and dust off the cobwebs 😉
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Sten Helmfrid Aug 4
Untold stories, Emma Jewels: “I have lost my job, my hobbies, my subsequent small business, my marriage, the majority of my friends, my autonomy, my independence, the ability leave my home or often even my bed for weeks and months on end.”
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ME/CFS Münster Aug 4
the average neurologist reading my -symptom list.
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Hannah Nazri Aug 11
As someone witnessing 1sthand of the dedication & passion of an patient puts into his research work & then to crash & burn repeatedly, I’m more than frustrated to see the double standard approach by the government & NICE. It’s an awful disease, just listen to the patients!
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#meawarenesshour
Lisa_Cat 4h
tonight at 8pm for and the growing cohort of sufferers. We can support each other - share the reality of serious post viral illness, learn and support the growing cohort of
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ME/CFS Tomorrow 3h
“Breakthrough is imminent!” Credits Pic: Pixabay Txt: BEM
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Alison Sbrana Aug 9
Replying to @SaleAlison
6 years ago, I was a young, healthy, active person when I got a virus. 1/8
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Terri Wilder 43m
Thanks to this Rep for raising awareness about the CNN article I was highlighted in. Appreciate their commitment to and Long Haulers.
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Derya Unutmaz, MD Aug 8
Today is Awareness Day for patients with severe . On August 8, we acknowledge the terrible suffering of people with severe ME/CFS symptoms. This much neglected disease, unfortunately will likely expand with , seen in patients who do not fully recover from
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AMMES 4h
The Mass ME/CFS and FM Newsletter is out! New publications, congressional briefing, and more.
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Dr Homeslice Aug 8
Reasons why, when doctors suggest my is anxiety or depression, I firmly disagree. It's not because I deny that anxiety and depression are valid and debilitating conditions. It's not because I would be ashamed to admit if I had either.... 1/
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