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IBD Nurse Kay Sep 13
Yesterday I asked what remission means to you & was overwhelmed by the responses. Here is a selection of them. . . . . .
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Jenny Donnelly💜 Sep 16
I go back to work today after having 4 months off due to surgery 💜
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Danielle_OCon Sep 16
HORRIBLE Even here in people suffer 😢 Just yesterday at NYC Symposium I met a young woman just diagnosed with unable to start treatment because she’s between due to a new job
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LollyBear ☆ Sep 16
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InflammatoryBowelDisease.net Sep 16
Living with ulcerative colitis is hard. Others don’t understand the unpredictability, pain, dependence on others, PTSD, and disordered eating.
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Leah Sep 12
Feeling very nervous about scan tomorrow. GP says nothing to worry about, 3 month wait, see surgeon & looks like I need urgent operation 😩 Having chronic stomach conditions suck. You get so used to living in pain you don’t realise when things get bad
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Kamme Art 23h
Dinner! Don't want to take any chances at White Sands tomorrow, so eating my very safe foods tonight! @ Best…
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Danielle_OCon Sep 15
Replying to @VBlush @hannahwitton
How blessed you are 💜💜 beautiful
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Danielle_OCon Sep 16
Replying to @ABeautyWithABa1
Mommy knows best 💜 beautiful
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Danielle_OCon Sep 12
Replying to @bottomline_ibd
My cardio doc bugs me because my pulse isn’t in the range for “my age” (56) it’s too low...but I run 3-5 days a week and I do weights, vinyasa yoga, pushups 💜 it’s the others my age who need to lower their heart rates
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InflammatoryBowelDisease.net Sep 13
I felt strong before my Crohn’s diagnosis. I had hips and curves and loved my body. It’s been 8 years since my diagnosis and I grieve my old body.
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InflammatoryBowelDisease.net Sep 11
Her Crohn’s has flared in other countries, in the middle of a conversation, or while on public transport…
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Danielle_OCon Sep 9
Replying to @wales28
What I find interesting is how as an we trying to promote understanding about our condition yet we are embarrassed by terminology related to our own bodies 😢 why is anus a word anyone should judge. How can we evoke change if we tiptoe around terminology? 💜
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InflammatoryBowelDisease.net Sep 9
The weeks after being diagnosed with ulcerative colitis were incredibly tough for me mentally because I wasn't prepared for any of it.
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Danielle_OCon Sep 13
Replying to @FezaRemziMD
If there’s anyone who can help this beautiful it’s you! I myself am living proof! Thank God she’s on your table because you’ll give her a May she be blessed and be well in your skilled hands!!
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Joan Grott Sep 12
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Angel30Eyes Sep 11
Love this, it describes me so well and also may help me get those stories flowing to get my work published
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Angel30Eyes Sep 11
Aren’t these two love birds super cute? A pair of Robins to adorn your home this Christmas, dm to order
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InflammatoryBowelDisease.net Sep 12
I encourage my fellow “spoonies” to continue to share, continue to spread awareness, and continue to advocate, regardless of the negativity that is online.
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Danielle_OCon Sep 9
FIT IS WORTH THE FIGHT!! Congratulations there’s nothing like running again post-op to make us feel like ourselves again 💜
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