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Breanne Tidemann Jun 3
Some of the fun weeds we were counting today in our first field of final year data collection! 1 down, 19 to go
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Oh TWIST! Jun 3
So, I hesitated briefly to retweet anything political here, but then reminded myself that won't change until I do! My focus remains on educating about HSD and EDS here regardless, but I will not stand totally silent on this matter.
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HC SVNT DRACONES Jun 2
Hey folx, will be on this platform. Go check it out!
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Ehlers-Danlos Support UK Jun 3
The documentary movie ‘The Dark Horse’ is searching for people living with and to have the chance to feature in the film! To get involved, email ashleighharley1@gmail.com Photo credit: Emma Lowe
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Oh TWIST! Jun 2
Magnesium deficiency can explain several of our common symptoms in the Ehlers-Danlos and Hypermobility Spectrum Disorders:
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Oh TWIST! 6m
Thank you so much for your support at any level! Together, we’ll get me published yet!
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HypermobilityMD May 31
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Dose of Reality Jun 3
Save a Life Safely – Overdose Prevention and Naloxone. The following recommendations are specific to overdose prevention and Naloxone distribution. More information at .
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Ehlers-Danlos Support UK 10h
EDS UK has over 50 local support groups across the UK, free for members to join and meet online with others in their local and community. Online meetings are now taking place via the Zoom platform
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Clair Louise Coult May 29
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Oh TWIST! Jun 1
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Ehlers-Danlos Support UK Jun 1
Research study exploring how people are managing health conditions following , the lockdown, & subsequent changes to the NHS. The researchers wish to learn from your experiences & suggestions to better support healthcare.
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Dose of Reality Jun 3
We will persevere if we protect our community, families and ourselves. We Are One. Find more information in our Native American Covid-19 Emergency Toolkit on our website at .
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Oh TWIST! 9h
Welcome new followers we look forward to sharing and syndromes info and tips with you. As well as signal boosting Black voices and all other POC. And all forms of gender identity.
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Daisy-Beth Jun 1
If you have a spare five minutes, I found this very accurate and reassuring. For those who struggle to understand the normal day of a person affected by please consider x
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Oh TWIST! 9h
Self-care and rest are also very valid acts of resistance. Just existing as a loving person who cares about and all minorities is an act of resistance. Please take care of yourself any way you need. All forms of resistance are valid.
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Oh TWIST! Jun 3
Replying to @H2OhTwist
PS and yes, this includes autistic advicacy and rights, especially as are so highly comorbid in autistic people. (Not "with" autism - we *are* autistic, we don't "catch", "have" or "cure" it contrary to medical view.) Just in case ur wondering.
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Oh TWIST! Jun 1
Coronavirus facts and tips for Mast Cell Activation and Histamine Intolerance patients via Functional ND Beth O'Hara:
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sarah🍒 May 28
Tbh, in times like these, I‘m a bit embarrassed to be a "fan" of the boys. Why can‘t u all quit judging and harassing for a moment and CALM TF DOWN. Like what tf is wrong with this fandom? Just enjoy the music, support the artist and TPWK!
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Dysautonomia Support Network May 31
Let's have some fun during and tell us your "If...You Might Be a Zebra." Ehlers-Danlos syndromes and hypermobility spectrum disorders are no joke. Visit to learn more.
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