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Kevin, eminence grise Jul 22
This is tonight. Please let me know how I can pray for you.
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Gliseria 10 Oct 18
What most days without medications feel like 😞
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Stephanie May 24
Hi this is a reminder that is the WORST 🤬 my feet are burning and in agony UGH
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Hell on Wheels🔥♿🔥 Aug 20
Replying to @rollwthepunches
Guess who forgot that in the unlucky few w/ really severe cases of (It me!🖐) it can also affect your organs?! Yup. Eyes on fire. Not the band. MY EYES ARE ON FRIGGIN FIRE. FOR REAL. but i'M NOT CRAZY THOOO
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Damanique Dec 15
Also, no one told me that would make my feet swell up so bad that the feel on my heels actually crack open!
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Mário Seabra Coelho Jul 1
Long shot, but bois and girls out there, ask your doctor about transdermal amitriptyline + ketamine. Cool lil cream, no side effects. Just don't snort it.
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Jill Jones 🧝‍♀️ 29 Aug 18
Up at 7 ready for the FedEx truck to deliver my Haegarda so I can zoom off to meet my new Neurologist, I’m nervous and also nervous 😬😬lets hope he’s heard of HAE and 🤞🏻🤞🏻🤞🏻🤞🏻
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Erythromelalgia 30 Aug 18
Do you have (EM)? Post a photo that shows what EM looks like for you and let us know what symptoms you are experiencing. Your response may be used in a post or video on .
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MyFibromyalgiaWorld 11 Jul 18
didn't know there were others like me on twitter. i been diagnosed with 's but i think i also have for years. is any one else getting warm just from LOOKING at the sun ? or do you feel you "draw" heat to you? even from a meter or 2 away?
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rachel stubbens 12 Jul 18
This is what it looks like for people living with aka The burning mans disease. I was getting lucky taking aspirin which was reducing the flares but that has stopped working. Someone please find a cure for this painful disease.
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ChronicDiseaseHQ Jun 1
Need to Know: Why Are My Feet Burning? - Multiple Sclerosis News Today -
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KG💖💛💙 Jan 6
Anyone on here with ? Mine’s been flaring bad lately
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Suzan Jackson 4 Apr 18
I got an A from my dermatologist at my 6-month check-up today 😀 Moles, etc are stable, minimal sun damage, and he was thrilled to hear my is in remission. Such a nice (and rare) experience to see a doctor & everything is good!
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iCademy Middle East 22 Jan 18
- iCademy ME students supporting their brave classmate, Lynn! The red hand challenge aims to raise awareness of the rare disease . Thank you for teaching us what it means to be brave Lynn!
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Dean De Brún Feb 3
Replying to @reus85
On 10 January I managed to run my first 5km since being diagnosed with . I just ran 10km in 1 hour and 10 minutes and walked 1km as a warm up. I've had a few flares this weekend which took the wind out of my sails, so this morning's monster achievement was needed.
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KG💖💛💙 Jul 26
Thought I could turn off the air conditioning at night, but then my ears flared whoops
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Youmna Ouraybi 3 Mar 18
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Avgchic Mar 18
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Youmna Ouraybi 28 Feb 18
My and I fighting with a Smile despite the daily pain and burning flares! Find a cure for because
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Unvirtuous Abbey Jul 22
Kevin is an honourary monk of the Unvirtuous Abbey. This is his daily reality which he shares as a testimony. has ended a brilliant teaching career for him. He talks about living and loss He has been like Jesus to me and I want you all to know him.
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