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Mimo Gutiérrez 23h
Dear Guterres: I am writing to you because I´m interest in collaborating with UN from my area of ​​knowledge and participating in the transformation required to find new ways to educate for
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Steph 🌿 Aug 15
woke up with these random red spots on my cheek. anyone know what this is??? it doesnt burn itch or hurts me. it’s just there?
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M🌻 23h
I’m in so much pain today 😭😭 I hate that I have EDS. It’s not too often during the warm months that I have super bad days like this, but when they come, they’re bad 😭😖
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Charlotte 17h
I'm in my mid 20s and I've been subluxing my shoulders > daily for 20+ years inferiorly. If I stop, my upper traps may finally not hurt, but then I can't brush my hair or sleep, let alone scratch my back (the irony). PT scapular retractions make me sublux. tips?
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Andrea Aug 17
“So you are a little bit bendy?” Sorry for graphic pic, but this is my reality. If I fall, my hand always lands like this - all my large joints twist and dislocate out. This doesn’t actually hurt, my wrist pops back easily, but the surrounding muscles speak up!
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Lynsey Aug 17
My right hip isn't fully sublaxed but it's been a quarter out for the past few days so when I take a stride it's mega clicking, like nauseating.. click click click 🤮 very annoying. Normally it just comes out and I can get it back in but it's inbetween 😐
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Siân Roberts Aug 15
This is so surreal. I never finished school and never thought I'd be well enough to go back to education. But less than 2 years on from life changing surgery, I've just got into medical school!
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Nix Aug 17
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UK Manufacturing 6h
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Caroline - Eos Advocacy Aug 16
Replying to @robyndarcey5
Some of my gadgets I’ve accumulated over the years. Lots of physio, chiropractors and Osteopaths before my diagnosis age 43.
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JW Aug 15
Glad to see get some much needed attention on . Most importantly, I hope Debra & Delaney get the answers they need and deserve!
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spencer oli Aug 16
today i legit sent my friend the message “so i popped my entire lower spine and hips back into place and the pain went away” and like. if that isn’t the lifestyle I don’t know what is!
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Mimo Gutiérrez 23h
Replying to @Mimogutierrez
The processes of incorporation into the Organization are not agile, I think of course, due to the demand. However, I am in order to support the analysis and construction of global policies in
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CGSMichelle 3h
I increased my magnesium intake. Someone here with suggested it and I find I do have more energy. Surprisingly despite I am not having a problem digesting the supplements. Trying to win! Now I need advice about Iron!
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💖💛💙 Comrade Possum Aug 18
Hey Twitterverse, someone very close to me thinks they may have Could anyone share stories of their experiences with this or resources for getting medical help and/or improving quality of life?
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𝓝𝓲𝓷𝓪 (𝓣𝓮𝓪𝓶 𝓑𝓪𝓻𝓫𝓪) Aug 17
Replying to @blu_eyed_demon
I dislocated mine a few days ago and omg it still hurts! So I feel u. life for u....
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Nerdy Zebra Aug 16
I often think about how groups who ban people (sans obvs trolling/problematic types) without any kind of notification or clarification tend to unknowningly ban autistics bc of communication differences. I wonder if this is why I got banned from the main group on fb.
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Charlotte 18h
Car/plane seats with head rests moved forward hurt so much that I quit driving. Is this an problem? Prone to neck and shoulder and upper back pain and shoulders sublux multiple times per day: related? Strategies? Neck pillows make it worse.
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Melancholy Tiff *Capitalism kills* Hallback 20h
This disability has me folded the fuck up. You hear me.
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KFleck BrandFearless 21h
My friend Amanda has a rare genetic connective disorder called Ehlers-DanlosSyndrome if you can support in any way even just a retweet please do.
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