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Pam Turner-McFadden Jul 17
When you just want to celebrate but your body is like...
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DMRF Canada Jun 20
Show the world what is like for YOU on . Share a challenge, a triumph, coping tips, or life hack for Tag #dystonia#dystonialifeselfie
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Jane Evans Jul 6
Emotional, enlightening day of learning and connection at the European Dystonia Conference. With my amazing son whose lived with dystonia for 16 years and my fantastic daughter-in-law
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Louise johnson 10 Apr 15
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Chantel Marie 24 Jul 14
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Josh Farnsworth 27 Sep 17
Day number three staying in basement
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Nolan Blanco 26 Sep 14
PR for a 10K!! Running for those who can't. I just ran 6.30 mi with Nike+.
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Chantel Marie 19 Apr 14
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Borderline Jon May 13
bad today. Tongue cramping and jaw and neck tight and off to one side.
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Josh Farnsworth 25 Aug 17
Too much energy and electricity in the air stuck in the basement
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Renee C. Apr 13
I’d forgotten how exhausting it is to host a bunch of folks all by myself—and it was just an hour visit, phew. 😓
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Colette Brown Jun 21
isn’t always easy but it’s my life and I choose to make it the very best life it can be. When a left me with and a I learned quickly to be for…
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Fie Kyndley 21 Sep 15
is standing in a hot shower -- exhausted -- at 2 a.m. because you're in a storm you can't calm...
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Josh Farnsworth May 30
These may be the Ramblings of an idiot but it is Living With Dystonia: Even Those Closes to Us Do Not Understand - random Thoughts
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Nikkia Noiles Jun 21
For I want to bring national awareness to Dystonia with others suffering WW. my challenge are dark days of pain & My success local neurologist said no hope I fought to see neurosurgeon proper diagnose 3 1/2 yrs, LH my pen in pic
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FRANK DRAKE JR 🐵 4 Mar 18
I guess I have to start dancing now???
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Chantel Marie 29 Jun 14
is a little difficult but I do have some . #
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Pam Turner-McFadden Jun 19
Dystonia is very real and everybody's story is different. I have exercise induced paroxysmal dystonia. It challenges everything that makes me me. Doctors tell me to give up some of my favorite things. I take it as a challenge.
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mae☯️ 2 Feb 14
I'm already freaking about senior pictures because of my Dystonia. Locked ligaments are not cute.
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Joanne Lorenson 28 May 18
Replying to @jolassXxX
To get rid of it to stop the original one getting worse (which it is at a very drastic rate I might add) and then in turn get rid of the secondary condition and then preventing the third one. Now just need to get the wheels in motion
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