Twitter | Search | |
Search Refresh
@NHS / Anthony Feb 16
There are over 50 companies working on treatments for - very exciting. Not much hope of reversing muscle loss but maybe slowing/stopping progression. Many adults don't care about walking again but preserving heart & respiratory function is very important.
Reply Retweet Like
CDC Feb 5
People with muscular dystrophy (DMD) are living longer, so their care needs are changing as well. Read the latest clinical care considerations for treating DMD:
Reply Retweet Like
CDC Feb 12
The latest care considerations for children with muscular dystrophy will help healthcare providers and families manage the complex care of DMD. New sections include primary and emergency care & more:
Reply Retweet Like
@NHS / Anthony Feb 16
As my tweeting draws to a close I wanted to leave you with my top 5 tips for living with a like - thanks to and for the help!
Reply Retweet Like
Diana Ribeiro Feb 18
Great speech by Luca Buccella sharing his journey from adolescence and adulthood. His words were although is sometimes difficult the issues are not unsurmontable and can lead a good life
Reply Retweet Like
Omaira Gill Feb 18
All the little reasons why we don't stop hoping and fighting for a better tomorrow
Reply Retweet Like
World Duchenne Organization (UPPMD) Feb 18
The International Duchenne Conference in Rome has come to an end, leaving us feeling inspired and hopeful. So many advocates, families and researchers coming together, reminding us that teamwork is at the heart of great achievement.
Reply Retweet Like
Ritchie MH Feb 17
our combining US-EU excellence successful Phase 2A clinical trial now initiates Phase 2B to treat with US EU and RoW patient groups
Reply Retweet Like
Joining Jack Feb 10
Great win for in Brilliant to see helping us rasie awareness for with a JJ Salute It made Jack one happy little boy. Thank you
Reply Retweet Like
@NHS / Anthony Feb 16
Thanks everyone so much for all your support, tweeting as has been an amazing experience. I think you've seen a balanced picture of the positives & negatives of life with , PHBs and everything in between! Thank you!
Reply Retweet Like
@NHS / Anthony Feb 12
affects 1 in 3500 male births and very rarely girls too. Average life expectancy is now in the late 20s/early 30s depending on where you live. This is what it means for me at age 37.
Reply Retweet Like
Siobhan F Feb 18
Humbled and inspired, what a wonderful gathering of determined Duchenne/Becker families, academicians, healthcare providers, advocacy groups, and industry! #<confPP18> > #<Becker>
Reply Retweet Like
Summit Therapeutics Feb 6
Our community webinar on our PhaseOut DMD interim data is tomorrow 12:00 EST / 17:00 GMT, hosted by and . For details, visit:
Reply Retweet Like

Related searches

porta a porta · #bollette · forza nuova · #alcoa · ballandi
AnnemiekeAartsma-Rus Feb 17
A big thank you to all the staff of for organizing the meeting and all the other work they do for the families throughout the year. And to the translators that make it possible for all to follow the presentations.
Reply Retweet Like
@NHS / Anthony Feb 16
In November last year joined 's international conference to share 3 men's experiences of respiratory care with . You can see the full talk here
Reply Retweet Like
World Duchenne Organization (UPPMD) Feb 17
During a round table, insight is given in how to regain balance in family life after a child or family member is diagnosed with DMD. Special emphasis is given on the communication of the diagnosis between doctors, parents, the patient, and his or her siblings.
Reply Retweet Like
Diana Ribeiro Feb 17
Thomas Voit answers questions on gene therapy confirms preclinical work by Sarepta Therapeutics on coadministration of exon skipping and gene therapy
Reply Retweet Like
@NHS / Anthony Feb 16
I have a great life with but I'd rather not have it! I dont want to die young and I'd love to hug my partner properly and get a break from the ventilator. That's why new treatments are so important - and I want to move things forward even if I can't benefit myself.
Reply Retweet Like
Maria Fries Feb 19
Back home after two inspiring days in Rome spent at the with the big and powerful international Duchenne community. Thank you all for the inspiring moments, the chats and the hugs! I feel stronger now!
Reply Retweet Like
Shelley Simmonds Feb 19
Thank you for all of the kind wishes and love today, means a lot to know people care. Onwards into year five... 💙
Reply Retweet Like