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WDAD18 Aug 14
Our very first sneak preview of the explanimations series is live! First episode is 'Duchenne 101'. Head over to our Facebook or Instagram to check it out ๐ŸŽˆ
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Sarepta Therapeutics 3h
Weโ€™re honored to recognize the remarkable achievements of the 2018 Route 79, The Scholarship recipients. Join us in applauding the tremendous talent of all applicants and wishing continued success to all on individual journeys in higher education
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Wave Life Sciences Aug 16
Today we announced that lead investigational therapy for has received US orphan drug and rare pediatric designations.
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Share4Rare Aug 12
ยซDespite our bad luck, weโ€™re lucky itโ€™s Duchenne. Somewhere, thereโ€™s a parent wishing they were me.ยป An inspirational story about a beautiful family facing Muscular Dystrophy. ๐Ÿ‘‡๐Ÿ‘‡๐Ÿ‘‡
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Masons Muscles Aug 17
If the boy wants a bobble in his hair, I'm going to put a bobble in his hair. with
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Action Duchenne 24m
We are delighted to share these wonderful pictures from Eleanor Ingman Stone's 80th birthday dinner and dance which was a huge success and thoroughly enjoyed by all. Thank you so much to everyone who attended and made this event possible!
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Caring for Connor Aug 13
Well today this happened! Another bitter-sweet day in the world of . A day our hearts ache but we continue to smile as we celebrate Connor being 9 years old, stop growing now please! Happy birthday to our amazing little fighter, we love you millions ๐Ÿ’™๐ŸŽ‚๐ŸŽ‰๐ŸŽ‚๐ŸŽ‰๐ŸŽ๐ŸŽˆ๐ŸŽ๐ŸŽˆ๐Ÿ’™
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Alex's Wish Aug 20
We are raising money to increase clinical trial capacity for Duchenne in the UK to reduce time taken for drugs to reach market
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JO-BU Aug 17
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Chasing Connors Cure Aug 16
Sadly attacks every muscle in the body, including the heart. With much battling we have managed to get Connor onto a heart med that weโ€™re hoping will protect his great big โค๏ธ for as long as possible...
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Gary Fegan Aug 17
Looking for good ideas / partners to help with fundraising for . So much research needing funding and the opportunity to bring digital solutions to helping those with and those that care for those with . If you can't help directly a retweet would be ๐Ÿ‘
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Duchenne UK Aug 14
We are offering families in the Duchenne community FREE copies of Janet Hoskin's DMD guide: 'A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents' Email us to request: dmd@duchenneuk.org
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Harrison's Fund Aug 18
Family Ambassador & Trustee,Nick Taussig is running the Phoenix Riverside Marathon for us in Nov.Nick's eldest sons, Theo &Oskar,both have Duchenne & he has pledged to keep running until there is a treatment to prolong their lives.
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DuchenneXchange 1h
can be confusing. Our Education Center houses a variety of written and visual materials that make them easier to understand. Learn more -
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Skye Precious Kids 2h
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The Rocket 5h
Baseball events with a great cause! Visit the @beergrottoa2 today to help fight Duchenne muscular dystrophy.
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Alex's Wish 14h
Muscular Dystrophy is a life shortening genetic muscle wasting condition that has no cure.
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Katie Hart 23h
Home!! Credit due to for their fantastic special assistance with Hugo, at both airports and during the flight. Everything went so smoothly, we really couldnโ€™t have had a better experience!
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Larry Luxner Aug 20
Read my profile of DeAnne Friar, a brave woman who lost 1 son to and hopes science will save the other.
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DuchenneXchange Aug 20
Sign up and be a part of the community! It's informative, interactive, and FREE!
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