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Australian Disability Limited 5h
Extracellular RNAs found in urine may be able to serve as non-invasive biomarkers of how patients with — especially those with an adult-onset and the more common MD form — are responding to therapy, a study reports.
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Shelley Simmonds Nov 13
My Weggy 💗 One of the first Duchenne Mums I ever met back in 2014 when all of this begun.
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Shelley Simmonds 13h
The secret is finally out! 😀😀😀
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DuchenneXchange Nov 9
Can't miss webinar: hosts Avidity Biosciences next week to talk antibody-oligonucleotide technology for patients with . Register and learn more:
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Australian Disability Limited Nov 13
One-Year Preclinical Study of Edasalonexent, a Novel Inhibitor of NF-kB, in Animal Models of to Investigate Potential Improved Cardiac Function
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DuchenneXchange Nov 10
Join and Avidity Biosciences next week for a can't miss webinar, learning how their tech can impact those w/ . Register now:
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World Duchenne Organization (UPPMD) 5h
Today, announced they will award the companies involved in project HERCULES for their collaboration with patients with an EURORDIS Black Pearl Company Award 🏆 for 2019. Bravo !
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Shelley Simmonds Nov 13
So grateful to have had Bobbie Farsides join me at the Action Duchenne conference this weekend to lead a session on clinical trial ethics. All thanks to that our paths in life have crossed - thank you!
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Harrison's Fund 14h
Calling cyclists! We are recruiting people to join Harrison's Racing Team at next year's Sun 4th Aug. Help us raise MORE money to put into the hands of researchers to find a CURE for ! Up for the challenge?ENTER THE BALLOT👉
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Laura Morgan (Priestley-Cooper) Nov 9
En route to the Sky High Ball in Kensington! Can’t wait. 🌟🥂
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Catabasis Nov 12
To learn more about our trial for in , check out the presentation from our webinar with , now available here:
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Catabasis Nov 13
Today we announced a collaboration with Dr. Pradeep Mammen from , which is designed to explore the potential of to improve cardiac function in and muscular dystrophy Learn more here:
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Catabasis 8h
We are so thankful for the opportunity to connect with the international community last weekend at the conference!
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@actionduchenne
Katie Hart Nov 10
On Tuesday, we will find out how 30 months of steroid use has affected Hugo’s body. He has his first DEXA bone scans and lung function tests, all in one day. Whilst steroids can help his body in one way, they could be damaging them in another way
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Yael Gruenbaum-Cohen Nov 10
⁩ : Guide for Families in different languages ..and not just . They have also for , and more. Also in Hebrew :) Well done guys!
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david abbott Nov 10
Replying to @DMDPathfinders
More in the stream at - now on finding a job. Benjamin talks about the benefit of work experience. It was flexible and they worked around me. Now working as writer on an output re steroids and from point of view of young men themselves.
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CureDuchenne Nov 5
Next week we're hosting a webinar with Avidity Biosciences who will tell us how they are advancing their antibody-oligonucleotide technology for patients with . Register and learn more here:
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Jesse's Journey Nov 13
to Meet with FDA to discuss HOPE-2 Clinical Trial for - click here for more info
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Harrison's Fund Nov 13
Massive well done to the as they attempted to scale the heights of Everest for us last weekend! Their superhuman efforts took them all the way to Base Camp. Great work, team- thanks for making time for children with .
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Shelley Simmonds Nov 13
. joining us the Action Duchenne conference. Always my pleasure to spend time with you. Thank you.
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