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Princess, The Tower Sep 20
“I force myself to be fine when I’m not. My body might be telling me to stop so I can rest, but I’ll pretend it’s fine because I don’t want people to see… I just prepare myself for the crash later on when nobody is around.”
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Thomas Kline MD, PhD Sep 12
Georgia PDMP flagged me and my patient “high dose” altho legal by FDA Stds. Pharm refused to fill. Secret profiling. Neither the patient nor the doc (me) were notified of this destruction of the doctor patient relationship by GA gov’t
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Princess, The Tower Sep 17
“People with don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness
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Samantha Sep 19
Looking for an illustrator to illustrate my first Children's Book which will be published in winter 2019.
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Princess, The Tower 4h
“Everything I do has to be planned out. If I am going out, I have to be sure to have my medication and my seat cushion. I need to know how long I will be in the car and how long I will be walking, sitting and standing.”
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Princess, The Tower 6h
“I don’t have a “low pain threshold” neither do the huge majority… Whenever it’s possible to physically do so, we do things…but we often do it in such pain that if anyone else experienced it, they would demand pain relief at the closest ER.”
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Jason jensen Sep 21
For most people with life altering debilitating pain, the potential side effects of extended opioid use pale in comparison to the pain and life limiting attribute of that pain. What kind of life is one in which people merely exist, and suffer during said existence?
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Deanna Burgart Sep 17
Recently diagnosed with disease - I am amazed at how much my chronic conditions have improved on a strict gluten free diet, including , brain fog, and . 10 lbs down in 1 month. I’m grateful to restaurants that understand how serious this is.
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Rev Ree 8h
I’m wondering how many of you w/fibro are in constant pain/flare every day! I can’t even tell you the last time I felt good. Prednisone is only time I felt decent! I am bed ridden basically. Is this normal?
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Burning Nights CRPS 15m
Thought of the day is medically a challenge to treat. Veterinarians receive 5 times more training in pain management than ‘people’ doctors.
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Chronic Pain India 2h
Having chronic pain is like being your own personal superhero. We are superheroes hiding behind our normal disguise. We fight and multitude of other symptoms. What do you think, my warriors?
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The Hummingbird Sep 18
In ABC’s show The Conners the character of Roseanne, who has been depicted as a patient, is set to die of an overdose in an episode over the weekend. Many CPPs feel this is not only inaccurate, it perpetuates harmful stereotypes that negatively impacts the care & QOL
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Amara Sep 22
If you have not seen the historic and outstanding presentation by to the OHA/HERC task force 9/20 meeting- here is some close footage. Keep Oregon’s fight going! 💪💜
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Princess, The Tower Sep 13
“Living with frequently means having : being unable to sleep because you are in too much pain. It also means being in more pain because you didn’t sleep, thus initiating the painsomnia cycle.”
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Pain News Network 12h
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Princess, The Tower Sep 21
“Those with often feel a great loss. It is not unusual to experience the stages of grief… They grieve for the life they once lived. They grieve for the life they must endure now. They grieve for the life they dreamed of…”
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Catherine 16h
9/14 had systemic im steroid - 9/22 its starting to wear off 😥 unbelievable! Had a lovely night out & woke this am to left shoulder & both knees flaring plus small joints in hands. What a let down
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Princess, The Tower Sep 19
“It’s very hurtful when people think those on disability just sit around all day… They have no idea the amount of pain, the symptoms… I would love to work.” What I Wish People Understood About Losing My Career Due to
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Sheri (LupusDiva) (osaxy) 20h
Thank you so much to those of you that DMd me. Sorry... I'm just not doing great. Still can't get all out of my lungs from that radiator leak and still no local GP doc. I'll get on phone again next week. Remember you are loved by me! etc. 💋
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@RoaringInPain Sep 14
I need help with fighting/appealing BCBS Ins. Prior Approval DENIAL for myOxy Rx at the quantity I’ve been taking for YEARS. Need examples/wording, medical or legal references, strategies, contacts, advice etc.THANK U!
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