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Salma Jutt 3m
Join us for the opening session of the ASPN Think Tank where Keith Boettiger, President of Abbott Neuromodulation and Dr. Timothy Deer will share perspectives on how the global pandemic has impacted healthcare.
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Princess, The Tower Aug 3
“If someone healthy woke up with the level of pain I live with on a daily basis, they'd be straight into A & E… The fact that I'm not crying or screaming…is not because I'm brave… You have to learn to live with it…there's no other choice.”
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Katarina Aug 8
Any one else feel pressure in a conversation about illness to end things on a positive note? Like we have to make it ok for them? I can't count the number of times I've said "But I'm seeing a specialist soon/ changing my diet again/ taking X medication..."
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Jessica Thompson 2h
Rough pain day. I know I look awful but thats what happens when your knee has been dislocated for over 30 mins & the muscles in your leg are spasming preventing you from being able to relocate it properly. hopefully it will sort itself out soon. still smiling though.
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Princess, The Tower 23h
“It takes longer to get ready in the morning. I frequently have to take breaks. Sometimes I have to nap after a shower because it was so painful and exhausting. It takes much more to even get up…because you’ve tossed and turned all night.”
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Journey Aug 5
Hello all, my name is Journey & I am a victim of the I have stage 4 endo, fibro & the early stages of RA. I've been degraded by doctors/ pharmacies but, I will stand for patients. It is a human right to receive proper pain treatment.
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Sling the Mesh Aug 7
Women treated like lab rats, implanted with permanent plastic mesh, when nobody knows long term outcomes, because nobody bothered logging complications for more than 20yrs
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Thomas Kline MD, PhD Aug 2
We want everyone to contact CDC & Congress for IMMEDIATE suspension of the CDC guidelines. Simple, protect the public. AMA reported harm to patients. The warning is public now. Any further deaths or ruined lives is now responsibility of CDC.
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katamac 🇨🇦 🇳🇿 🇺🇸 ⭐️🌟 9h
Simon Cowell broke his back & will need back surgery. I wonder if he will be given for pain control? I wonder if he will be another pt suffering from requiring pain meds? I hope not 😓
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Princess, The Tower Aug 6
“For a person with , staying home all day to manage symptoms isn’t relaxing or a vacation. It’s a necessity…I would much, much rather be out there working, even part-time, earning money and contributing to society.”
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Karen Aug 8
Have you tried Yoga, eating clean, FODMAPs, massage, on & on & fucking on. We've heard it all!
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Princess, The Tower Aug 6
“Just because I can do it, it doesn’t mean it doesn’t hurt. It doesn’t mean I won’t pay for it later. That is the nature of . It will always be there, even when it looks like it isn’t.”
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Thomas Kline MD, PhD Aug 5
The latest attack on humans who have pain is the phobic fear of large quantities of opiate pain medicine believing this will cause more problems than small quantities. Size does not matter.
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BLM | Zena A Zellers 🌈🖋📖 (46,219/100k) Aug 8
Apparently, my body really enjoys falling apart 😂 Seems like I've been walking around with a dislocated pelvis, which is why I've been in agony all week. How did I dislocate my pelvis, you ask? Pretty sure it was walking up the stairs! Yay EDS hypermobility! 😂
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Jess Aug 2
Discovered the hashtag this week and I'm so glad I did. I have been able to relate to some people and it has brought me some comfort in this challenging time of health
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Burning Nights CRPS Aug 8
Me, a spoonie, trying to sleep at all the night before any event that I have to be alert and low symptom for the next day...
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Mr. Hatter Aug 8
patients, people who have been cast onto the pyre that is the raging through the country, tell your story.
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Thomas Kline MD, PhD Aug 3
When did it start that abnormal urine drug tests should lead to discharge from the medical practice? Even CDC disapproves. It’s just vindictiveness for those who have been prescribed pain medicine
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Vee Mus'e 2h
Hard truth here. is a part of my every day life. There are days that are better. There are days that are awful. There is always pain. And I try my best to get through each day.
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Najikat -🐱 Mother of Kitties 🐱 Aug 7
Side note. I wore my first body con dress yesterday. I don't mean to be vain, I'm just shamelessly celebrating my life and how far I've come. 115lbs down since January 2019 and glad to be alive. ♡
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