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Princess, The Tower May 14
“In all my years as a doctor treating patients with , I never saw a patient who enjoyed feeling ill. I saw the opposite, patients who were once very active, desperately trying to find answers and treatment for their overwhelming symptoms.”
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Ehlers-Danlos Support UK May 15
The London Underground chap just keeps getting better! Awareness and understanding is everything.
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Lydia Rivers May 20
One of the biggest unintentional ableisms I often encounter revolves around the belief that stopping work due to health problems equals "time off." (thread)
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The Chronic Theory May 20
People who talk about their illness and it’s associated journey are not attention seeking by discussing it.
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K2A Alliance 4h
A/Prof is a researcher, clinical psychologist & K2A Alliance member: “Emotional health problems have an impact on physical health outcomes.” Watch Vanessa’s video to find out her wish for children & young people living with a .
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Princess, The Tower May 16
““But you were fine yesterday!” There will always be people who cannot even begin to grasp the discomfort you are in, but the people worth spending time with are the ones who try their best to understand.” 5 People You Meet When You Have
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The Able Label 3m
To celebrate Ehlers-Danlos Syndrome Awareness Month this May spoke to 3 women with EDS to find out what they do to take their mind of their symptoms. Read more >
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Ethan Pleshe, MSW, MPA May 22
Comments like the following ⬇️, although well-meaning, are quite hurtful. Those without MS, try not to say these please.
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Jaimie N. Schock, Author 14h
sucks. I want to write, but my body is not cooperating
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Ami Tricker ♿ May 17
As part of my blog I plan to raise awareness of disabilities/illnesses. Would anyone be interested in taking part in writing a guest post about your condition(s)?
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Lene Andersen 4h
Come join me on the couch — there is room for all of us. My new Facebook group is all about talking, laughing, sometimes crying about, and supporting each other. Join Lene’s Couch
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Allison 10h
Replying to @little_finch
- YOU CANNOT FIX THEM - No really, you seriously can't fix them. It's not your job, it's not your responsibility, that is NOT how you show up in this situation. Stop trying. You will burn out/resent them/feel terrible/make them feel terrible.
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2gallonhabit 11h
Even with a good night's sleep, is kicking my butt today. Maybe I'm dehydrated? Anemia? Low Vitamin D? Glad I'm testing for the latter two next week.
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Shadow's Edge Game 3h
By telling your story, you can help other people who are where you've been.
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Lene Andersen May 21
Or tattoo it on my forehead?
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adrenalfunnies 8h
They told me to act professional, does a professional wrestler count!?
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Dawn Harris May 21
In case someone needs to hear this: keep fighting!! Your life has meaning and value!
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Chronic Illness Support For All UK 15h
What a great night ! Few photos from our Quiz night 💜
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hazel kirman 23h
It's a debilitating cruel thing but we are stronger with good support
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Digging Deep May 22
You have friends that want to help. Here's one way they can.
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