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swaggsheila 17h
Sheila diagnosed MBC in 2009 at 43. Birthday is Friday. Hello Everyone
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Nikhil Wagle, MD 16h
Hi everyone - Nick Wagle, medical oncologist and researcher in Boston here
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Julia Maues 16h
Oh hi! Julia in DC living with MBC. Sorry I’m late but so happy I made it. and don’t mess around! These guests 🤩
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judy garber 16h
A1 BFOR is a pilot study first on a group with high risk of a BRCA mutation - we will expand beyond once we learn better how to do it
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judy garber 16h
Thank you so much! I'm a twitter Novice, so bear with me!
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Alicia C. Staley 16h
T1 - For more on mutations, check out the Fact Sheet from :
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swaggsheila Jul 15
I just want organizations to include people that look like me when they make decisions from the top down.
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judy garber 17h
Hi, happy to be here with this awesome group
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swaggsheila Jul 15
We have to be included when recruiting. Put an AA advocate with your grant. Let us help you recruit. Let us be in the room.
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Robin Holmes 16h
Hello Gang! MBC Memphis caretaker to the greatest man on earth. Advocate between scans! Back from
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judy garber 16h
A2 We are pioneering ways to make testing more accessible - by iphone or online - with medical support. We hope it will work for many
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Gary L. Thompson 17h
friends - ⁦⁩ and I will miss you tonight. At beach in Ft. Morgan, AL. 16 year tradition. Kyla was not yet 2 on our first trip. 1/2
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swaggsheila Jul 15
T3: Clinical trials are so important not only for all communities but AA communities. I’m on one and it’s working.
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swaggsheila 16h
I am new to learning about the BFOR study so learning. How does this apply to the AA community and are AA apart of the study?
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swaggsheila Jul 15
Diagnosed 2001 died 2004. Me diagnosed 2009 5 years later. Didn’t know MBC meant Stage IV. I asked my Dr how many stages are there
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Alicia C. Staley 16h
You can learn more about Dr. Garber () here:
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judy garber 16h
A3 We have partners in the advocacy world too but I'm learning about new groups tonight!
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judy garber 16h
A1 BFOR study is using new ways to bring genetic testing to the Jewish popn- 10x more likely to inherit certain BRCA gene changes.
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Lori Adelson 16h
Replying to @judygarber5
My brother and male 1st cousin both have metastatic prostate cancer w BRCA2, cousin also had pancreatic and his brother had breast! men got hit harder than we women. Only two women thus far in my gen had one BRCA cancer each vs three men with 4 cancers, I rest my case
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swaggsheila Jul 15
Tuskegee, Henrietta Lacks we have to continue to educate and inform. It’s important for Drs to educate as well. We are not guinea pigs
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