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#CRStrials 15 Jul 18
From World IBD Day 2018 , has the patient feedback summaries for all studies at -QoL CRUISE Dietary Algorithm Dietary Sulphur Fertility IBD Fatigue
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Justine Mower😷 Dec 28
please pass on our love and thoughts to the team, especially James, Dominic and Marisa ❤️
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The Bottom Line (IBD) 6 Aug 18
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Justine Mower😷 20 Nov 18
Then for Rockstar Rookie I’d like to Nominate Gastro Research Nurse Dominic Studart, he’s supporting me through my participation on the trial. He’s been an ear to listen He’s been an email buddy when it’s all been too much He’s help rescue me from a meltdown 1/2
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Kapil Sahnan 12 Jul 18
will test whether with much lower doses of will still be effective but also much safer in . Read the & Public involvement summary
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Nigel H 4 Sep 19
Replying to @jussiemow
The whole trial sounds such an exciting development for patients. Are the trials being held around the country?
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Justine Mower😷 Oct 15
Well done Prof. James Lindsay - not surprising really! He’s a bloody star 💫
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Charlie Lees 15 Mar 19
For some people with the most difficult to treat 's autologous stem cell transplantation is a great treatment. is the brainchild of Prof James Lindsay ... it will provide much needed data on the effectiveness of this approach. Delighted to have Edinburgh open.
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Justine Mower😷 15 Aug 18
Replying to @BartsHospital
I’m currently on Budesonide and waiting to take part in the stem cell transplant at
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The Bottom Line (IBD) 7 Jul 19
Please join me in sending best wishes to as she undergoes chemo tomorrow to start her pioneering Crohn's stem cell treatment () at Barts Hospital. This treatment has the potential – quite literally – to reboot the life of a person with .
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Spyros Siakavellas Nov 11
Last but definitely not least in the early afternoon session Prof. Lindsay gives and overviee for the trial that tries to assess the potential of autologous stem cell transplantation in refractory , an intriguing option for this patient subgroup
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The Bottom Line (IBD) 15 Aug 19
Chronic illness teaches us to brave but to embark on a stem cell transplant is surely courage on another level. Please join me in wishing Lisa well for what will hopefully be the dawn of a new era for her Crohn's.
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Jonathan Macdonald 15 Mar 19
Great news! - study now open in 🏴󠁧󠁢󠁳󠁣󠁴󠁿. Congrats & ! Brilliant time for research in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 - lots collaborations, enthusiastic research teams, engaged pts. - let's publicise and promote all the great work going on!!
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Justine Mower😷 Oct 18
i’d like to acknowledge and ask if you could pass on my thanks to IBD Research Nurse Dominic Studart who called me today to check if I was ok after I’d had a particularly upsetting appointment on 17/10. He has been so supportive
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Lisa Colcutt 8 Sep 19
Not saying it’s my best look but it’s better than it coming out in patches. It’s at least tidy. I have a patch of psoriasis but now there’s no hair I can put cream on it! Now to learn how to do makeup so I don’t look so pasty!
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Justine Mower😷 17 Oct 18
To the train travel gods and please let me get to my appointment because I’ll find out if I’ll get my stem cell transplant.
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Lisa Colcutt 4 Sep 19
Just had lovely visit from Prof Lindsay who is leading ASTIClite trial. I’m reassured and although early days & long road/rollercoaster ahead I’m optimistic about the future(but realistic!)I really hope this becomes standard tr for Crohn’s.
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Lisa Colcutt 10 Sep 19
Finally after nearly 4 weeks in hospital and earlier than planned I’m on the train home (back next Wednesday) long recovery road ahead but much easier to do in your own environment.
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Justine Mower😷 Oct 18
Today is a year since I was randomised for standard care In that time I’ve learned that steroids have kept me, on the whole, functioning, that I am really patient, that I have pinned all my hope on the actual transplant and most of all my body really hates me
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Innovation2 7 Aug 18
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