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The Bottom Line Aug 15
Chronic illness teaches us to brave but to embark on a stem cell transplant is surely courage on another level. Please join me in wishing Lisa well for what will hopefully be the dawn of a new era for her Crohn's.
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georgie salt 6h
Here I am week 15 post transplant. Hair is growing nicely. I’ve had a troublesome 6 weeks and my transplant journey has been tough recently. But the Crohn’s has continued to behave. My journey continues!
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Justine Mower Jun 7
A year ago today I signed my informed consent for my participation in the It seems both an age ago and also like last week. Here’s to November
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Charlie Lees Mar 15
For some people with the most difficult to treat 's autologous stem cell transplantation is a great treatment. is the brainchild of Prof James Lindsay ... it will provide much needed data on the effectiveness of this approach. Delighted to have Edinburgh open.
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The Bottom Line Jul 7
Please join me in sending best wishes to as she undergoes chemo tomorrow to start her pioneering Crohn's stem cell treatment () at Barts Hospital. This treatment has the potential – quite literally – to reboot the life of a person with .
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Justine Mower 15 Aug 18
I’m currently on Budesonide and waiting to take part in the stem cell transplant at
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Lisa Colcutt Sep 8
Not saying it’s my best look but it’s better than it coming out in patches. It’s at least tidy. I have a patch of psoriasis but now there’s no hair I can put cream on it! Now to learn how to do makeup so I don’t look so pasty!
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Justine Mower Oct 17
To the train travel gods and please let me get to my appointment because I’ll find out if I’ll get my stem cell transplant.
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Justine Mower Nov 20
Then for Rockstar Rookie I’d like to Nominate Gastro Research Nurse Dominic Studart, he’s supporting me through my participation on the trial. He’s been an ear to listen He’s been an email buddy when it’s all been too much He’s help rescue me from a meltdown 1/2
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Justine Mower Sep 1
1. It took 6yrs to be diagnosed 2. Was diagnosed in 1998 3. I’m on the trial as I have no other treatment options!
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georgie salt Aug 15
Week 10 post transplant and the whole process of hair loss and regrow has happened so quickly! I’d say the whole ‘hair’ situation is back to normal now. Everyone’s different, but wanted to send a little reassurance for others ❤️
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Lisa Colcutt Sep 10
Finally after nearly 4 weeks in hospital and earlier than planned I’m on the train home (back next Wednesday) long recovery road ahead but much easier to do in your own environment.
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georgie salt Aug 4
8 WEEKS POST-TRANSPLANT! and 2 days drug free. Only 3rd occasion in 22 years being drug free (the other 2 being for very short periods after surgeries). Date night for husband’s birthday
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Jonathan Macdonald Mar 15
Great news! - study now open in 🏴󠁧󠁢󠁳󠁣󠁴󠁿. Congrats & ! Brilliant time for research in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 - lots collaborations, enthusiastic research teams, engaged pts. - let's publicise and promote all the great work going on!!
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georgie salt Aug 8
2/2 (April 2019) The period between conditioning and harvesting was fortunately a breeze for me. Day 1 of harvesting and over 14 million stem cells collected on this amazing machine!
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The Bottom Line 6 Aug 18
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Lisa Colcutt Sep 4
Just had lovely visit from Prof Lindsay who is leading ASTIClite trial. I’m reassured and although early days & long road/rollercoaster ahead I’m optimistic about the future(but realistic!)I really hope this becomes standard tr for Crohn’s.
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Justine Mower Sep 4
penultimate appointment tomorrow. Symptom diary complete, train ticket downloaded, paperwork sorted, bag packed. Already to go and see the team and ask when I can be booked in for transplant. I’m ready now. Really ready!
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Nigel H Sep 4
Replying to @jussiemow
The whole trial sounds such an exciting development for patients. Are the trials being held around the country?
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Kapil Sahnan 12 Jul 18
will test whether with much lower doses of will still be effective but also much safer in . Read the & Public involvement summary
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