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Andrea Pauls Backman Dec 1
Dr. Zyangyu Zou of SORACC discussing support and care in China, incl the ALS Million Breathing Project.
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Andrea Pauls Backman Dec 13
What a great set of meetings we had in Perth!
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Phil Green Dec 13
It was such an honor to be a small part of those two days, and see the sharing of ideas from ALS/MND/ELA orgs across the globe.
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Andrea Pauls Backman Dec 1
Sarah Wiley of (Western Australia) presents how it measures its service provisions & education to people with .
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Roisin Duffy Dec 3
Next up at the 30th Int’l Symposium on ALS/MND in Perth is Ireland’s own Prof Hardiman
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Carol Birks Dec 3
It has been a pleasure - wonderful to welcome you and the five Patient Fellows to Perth on behalf of
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MNDRIA Dec 1
Brilliant summary of what we know and don't know on the causes of MND
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Catherine Cummings Nov 18
Looking forward to Open Science In Action @neuro_MNI Diseases of the brain are the biggest unmet challenge but ALS /MND will be solved through collaboration and open science.
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Carol Birks Dec 2
See you there! Just one of many satellite meetings this week in Perth at the
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MNDRIA Nov 30
And so it starts - a 6 day crash-course in everything MND. Looking forward to learning an incredible amount and meeting amazing people
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MND Australia Mar 19
Such an amazing achievement - congratulations
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Roisin Duffy Dec 4
Jet lag just got a little more palatable... conference treats style 🍦
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ALS/MND Alliance Mar 20
Expanded telehealth in the USA will be helpful for the ALS Community there during Covid -19. Let's hope all countries do this! Thanks for this timely blog
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ALS/MND Alliance Mar 17
Connecting ALS is a weekly podcast produced by The ALS Association highlighting research and technology developments, ALS advocacy and issues that are central to the well-being of the ALS MND community. Give it a listen:
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Catherine Cummings Mar 8
Happy IWD to these two AWESOME women who are on track to break a world record for cycling 18000 miles on a tandem!
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Tammy Moore Nov 30
Privileged to serve on the Board of the International Alliance of ALS/MND Associations. An incredibly dedicated group committed to working together
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Jayne Halhead is staying 🏡 Dec 3
Invaluable information and advice on research from Professor , , ....
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Carol Birks Dec 2
Welcome meeting on behalf of from board director Update on work of Alliance since meeting in Seoul in 2018 and working together with
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Kati Kaijasilta Dec 4
An awesome day ended with the first global Walk To D-Feet MND ALS
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Tammy Moore Dec 4
An incredible, dedicated group of people - tackling the diverse challenges facing the ALS community, from so many perspectives and different approaches but united in the fight to end ALS/MND. @
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