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Corey Polen 🧑🏽‍🦼 Pass PPA Promising Pathway Act 35m
After witnessing firsthand the deny an EA for 10 patients because it was too large, the only real solution is the Promising Pathway Act. EAs will leave many ALS patients behind. Make sure you push your orgs to support quicker access 4ALL not some.
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David Adt ✊🏾 Oct 20
Today would have been mom's 74th birthday. She passed from ALS on 04/05/16. Mom was a lovely woman, strong and fit and then within 18 months, cut down to nothing. I never told her she was a good mom. I regret that. Tell your people you love them, don't ever forget that.
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ALS NEWS NOW! Oct 22
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Rockin4ALS Oct 22
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Julia Cantero Oct 21
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Sherry Quisenberry 13h
Is anyone listening to us scream for approval and access? We e only been waiting for 80+years. Watch the video to see our journey and the let’s chat. 👇🏼
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Laura Boman, PhD Oct 22
Today is the 8th anniversary of my dad’s death. He was a quiet man who loved practical jokes and, though always practical, never failed to stop a turtle or snake cross the road safely. Today I’m donating to fund research for . I hope someone out there reading this will too.
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Carmen Oct 21
Someone said "if ALS was contagious then the FDA would make the treatment available by now".WOW. Its true. is always forgotten about & it is 100%FATAL, its literally a 2-4 year death sentence. would save lives, it passed trials, but is holding it. WHY?? CRUEL.
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Rockin4ALS Oct 19
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Julia Cantero Oct 23
Thank you for staying the course. My brothers and sisters worldwide need Let’s go Baby!🙌
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Shevia Denise Oct 21
“Don’t cry for me. Smile for me. It is the only good view that I have from here”. ~GP
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Julio Aceituno 38m
Thank you for your commitment to the community.We need production all over the world,not just in the USA.We are 500k worldwide!Time is crucial!
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HRTwisdom 21m
IGF-1 STIMULATES THE GROWTH OF MOTOR NEURONS IN THE BRAIN We are just beginning to learn about the fascinating ways in which hormones such as Human Growth Hormone and IGF-1 maintain proper health
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ALS NEWS NOW! Oct 23
Widespread "ALS defeatism" is a serious problem. ANY pALS will tell you it's real. Often, ALS "doctors'" words hurt pALS just as much as ALS itself. pALS, unite! Say "NO!" to allowing such cold, condescending "care", and DEMAND treatment- or we will never change
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Mark Berardi Oct 21
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Harry Griffen Oct 17
I'll help you with your pre-reading, Dad!
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Bro. Thomas Puccio, C.F. X. 16h
Pausing at Ell Pond on ALS Walk 2020.
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Stacy Oct 21
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Amylyx Oct 23
On Monday, 10/26 at 7pm EST, we’re hosting our “Long-Term Survival Results from the CENTAUR Trial: AMX0035 in Amyotrophic Lateral Sclerosis ()” webinar. Please join us and share any questions you may have about the trial by registering at
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VP🐬 Oct 23
Every 90 minutes, someone is diagnosed with . In the same period of time, someone will pass away from ALS. Join me to help change these statistics by making a donation to support my efforts.  
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