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Functional Movement Disorder Aug 10
Replying to @FmdMovement
It can be really awkward & upsetting, for example: you may want to cuddle your family & partner but never know if it’s going to be ! Even clothes against my skin can hurt at times 🤷‍♀️
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Functional Movement Disorder Aug 10
I found this of a abut fascinating. It talks about a rare type of pain, & one which I have so can understand 😐
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Jon Stone Aug 8
Persistent pain is common in FND. This TED talk is a good introduction to how that happens. More pain videos at . If you know whats gone wrong in your own brain and body then therapies to "retrain" it make more sense.
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Jon Stone Aug 8
All docs should be aware of Lyme and the conditions it can cause. But can we have some balance? If a guest suggests NICE UK Lyme diagnosis and treatment practice fails people in chronic pain, this needs discussion.
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Functional Movement Disorder Aug 8
Absolutely, treat each symptom! 😊
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Functional Movement Disorder Aug 8
I have always said we need to be treated for each symptom. I always tell other sufferers to get their drs to treat the symptoms too. Too much of labelling people or making them feel guilty for becoming ill!!!
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Functional Movement Disorder Aug 8
-Unacceptable standards, need more training or need total retraining. All things written about assessors, in the report. This is appalling & would not be stood for, in example: banks, insurance brokers! So why is the government allowing this to happen?
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Functional Movement Disorder Aug 8
Sadly the standard of assessments continue to be low standard! With some claimants left waiting longer than they should for their decisions. - Secret PIP files show one in three assessments by had significant flaws – Disability News Service
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Functional Movement Disorder Aug 8
I agree it should be decided on which one name they want to call it, then stick to it. So or , which has many symptoms, with many that overlap other movement disorders.
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Kevin Clark Aug 6
Replying to @isobel_anne
Something all of us with FND would like to know? It should be taught in medical training universities and training hospitals. Why it’s not when it’s so common is anyone’s guess. .
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FND Action Aug 6
Replying to @isobel_anne
Thank you so much for all the effort you put in to raising much needed awareness of FNDs through education & training. It would be beyond valuable, in fact logical given the commonness in Neurology, for FNDs to be included in primary & secondary care training as standard practice
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Dr. Isobel Williams Aug 6
Replying to @isobel_anne
I’ve not had medical training, but it’s been my impression that isn’t routinely taught about in medical education (nurses, doctors, etc.) Is that REALLY true? If so, that REALLY needs to change. P.s. more ppl attended than the pic suggests 😂 (2/2)
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Functional Movement Disorder Aug 8
You are doing a really great job. This is invaluable education to the people who need it. It is shameful it isn’t already taught to all in the medical profession. Thank you! 😊
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Matt Butler Aug 6
Excellent paper in the Bulletin on NEAD/FNEA and how to clinically distinguish from epilepsy. Important that each patient gets the right individual treatment. (Open access).
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Functional Movement Disorder Aug 8
I enjoyed reading this & feel it could help other sufferers. It could be beneficial in helping to think about our disorder in a new way. By putting our own thoughts & feelings into the different sections, & seeing how we react could open some interesting discussions 😁
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Functional Movement Disorder Aug 8
Replying to @BogdanBCG
Aww well done and 😊👏🏻
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Andrea R M Aug 3
I love this 😁❤️👍👏🏻 We are all allowed to be ill, and we are all allowed to be tired and rest. Tomorrow is another day, let’s worry about that day when it arrives 😊X
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FND Action Jul 29
Functional neurological disorders: acute presentations and management
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Functional Movement Disorder Jul 29
The Way It Feels... via @MovementDisorda This is me 🥺
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Functional Movement Disorder Jul 29
Keep up the great work Katie 😁👍
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