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Findacure
Findacure is a UK charity that is building the rare disease community in order to drive research and develop treatments. Tweets do not mean endorsements.
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Findacure 15m
Time is running out to for 's webinar with speakers from and that's happening TOMORROW! to learn what is and how can it benefit communities below! 👉
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Findacure 18h
We're thrilled for our friends at the ! Please join us in congratulating them on this wonderful accomplishment and milestone👏
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Findacure 19h
There's only 1 week left to go until the ! This year's congress is FREE for EVERYONE so claim your tickets now and come ready to learn🤓 Rumour is our CEO, , is chairing a panel😉 Register now👉
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Findacure 20h
Not a member of our Community Mailing List or Monthly Newsletter? Subscribe to both now so that you don't miss our two emails going out THIS WEEK! From the full programme to our monthly newsletter and more, we have the news you need! 👉
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Findacure 22h
Daisy, RARE Youth Editor for RARE Youth Revolution, shares her thoughts and experiences around an issue that is really important—RARE employment. Check it out now and RT! 👉
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Findacure 23h
Happening in 2 days!!🚨 Sign up to our next | Understanding SEO💻 on Wed 28th October at 10am! Discuss your experience with search engine optimisation, or , and have some of your frequently asked questions answered! Register now👉
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Findacure retweeted
World Orphan Drug Congress Oct 26
📣 is now a confirmed Sponsor! We're excited to have Health Sciences as a confirmed at . Join the industry by booking your ticket here:
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Findacure Oct 23
Replying to @ReverseRett @RettUK
Well done everyone!👏 Looking forward to seeing what your collaboration brings in 2021!
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Findacure Oct 23
We couldn't be happier to end the week with over 170 registrants for our Virtual Rare Disease Showcase! Please help us spread the word so we can hit 200 registrants by this time next week! Register below and we'll see you there😄 👉
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Findacure Oct 23
If you're a teen or young adult living with a , help , and Rare Youth Revolution by taking their quick survey Share how in young people is affected by living with a rare condition below👇
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Findacure Oct 23
Georgia and Daisy are two 20-somethings who are feeling their way around love and relationships as young women with a . This month they're bringing you their Top Tips for navigating relationships with RARE disease - check them out now!
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Findacure Oct 23
What made you want to move into the wide world of rare disease? "What attracted me most was a combination of beautiful science and a sense of moral purpose and mission." Read 's latest CEO Series with Dr. Thomas Rossi, CEO of Venthera!
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Findacure Oct 23
Blog Alert! This week’s blog is written by Dawn Baker, the mother of Joseph and Hannah Baker who you know from our : Youth Campaign on Facebook! Dawn shares her thoughts, worries & hopes as she navigates Joseph’s with 👉
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Findacure Oct 23
Come celebrate the achievements of the community this November at the ! 2020 hasn’t been easy, but not even can stop us💪 now to discover the innovative rare disease projects happening around the world🌎 👉
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Findacure Oct 23
You're invited! RSVP to attend 's RARE Champion of Hope Celebration on 12 November to find out if your nomination won for their inspiring work in ! The celebration happens all , so grab a seat and enjoy the show! Attend👉
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Findacure Oct 23
Thank you for sharing! We can't wait to read this year's entries🤗
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Findacure Oct 23
How has it been three years already?! It feels like yesterday🙈 Thank you for sharing your story with us and all those who attended our Rare Disease Showcase! Our is less than four weeks away so join us👉
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Findacure retweeted
Healx Oct 22
Fantastic article by 's CEO in . Well worth a read if you're keen to understand how and are bringing us closer to uncovering treatments for underserved conditions.
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Findacure Oct 23
Now that you know the winner of 's Glimmer of Hope , it's time you yours! Their calendar would make the perfect Christmas gift, so order now to ensure that your calendars arrive in time! Order👉
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Findacure Oct 22
Ready for an inspiring and insightful article that explores the emotional and psychological effects has had on and those living with ? Check out Georgia's RARE perspective in her article entitled, Lockdown priorities. 👉
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