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Cystic Fibrosis Trust
We're the only UK-wide charity dedicated to fighting for a for those living with . We monitor our accounts between 9-5 weekdays.
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Cystic Fibrosis Trust 21h
Replying to @cftrust
"Having cystic fibrosis as a Black man means being left out or misunderstood. I want to be heard, acknowledged, and represented." 4/4
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Cystic Fibrosis Trust 21h
Replying to @cftrust
"After years of being treated as an oddity, I want people to acknowledge that I am a Black girl with cystic fibrosis. I want my voice to be heard." 3/4
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Cystic Fibrosis Trust 21h
Replying to @cftrust
"As a black man with cystic fibrosis, I am in a minority group within a minority group. I waited my whole life to find someone I could easily relate to until I happened upon a Facebook group for post-transplant patients." 2/4
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Cystic Fibrosis Trust 21h
There is no one way to experience . It’s so important to understand different perspectives in the community. This we wanted to highlight the recent blogs from Kadeem, Lauren & Bobby on their experiences with CF as black people⬇️1/4
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Cystic Fibrosis Trust retweeted
Barry Taggart 24h
Brodie says thank you for his space hopper Just needs to grow a bit to use it unsupervised 😁
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Cystic Fibrosis Trust 22h
Brodie is very welcome - we can't wait to see him hopping all over the place!
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Cystic Fibrosis Trust Oct 22
Join us to find out about & how you can contribute towards the development of new medicines for through supporting them. We will hear from CF doctors, people with CF who have participated in trials and much more:
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Cystic Fibrosis Trust Oct 22
Replying to @robjimlewis @CFAware
We hope he's doing a bit better this morning 💛
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Cystic Fibrosis Trust Oct 22
Replying to @Joanna_Barrett
We're going to send this round the entire organisation - it's perfect!
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Cystic Fibrosis Trust Oct 22
Don't worry everyone has got your pumpkin carving plans sorted! 🎃
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Cystic Fibrosis Trust Oct 21
Final reminder that today is your last chance to apply for The Helen Barrett Bright Ideas Awards. Whatever you need to kick-start your dream career, if you’re over 16 you can apply. If that email has been left open on your tabs now is the time to hit send!
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Cystic Fibrosis Trust retweeted
Dom Hughes Oct 20
A great initiative from to support all aspects of CF research by encouraging people to get out and ride
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Cystic Fibrosis Trust Oct 21
Thank you for sharing your blog with us Jo, we've loved reading about Charlie, who sounds awesome, and your journey so far 💛
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Cystic Fibrosis Trust retweeted
Michelle Shore Employment Solicitor 😷 Oct 21
Some festive fun! A welcome distraction from... well, everything else really! Who doesn’t love a raffle? It’s for a great cause too. Good luck.
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Cystic Fibrosis Trust retweeted
Cambridge Centre for AI in Medicine Oct 21
Leading from the directors of and colleagues offers unprecedented predictive power to clinicians caring for people with , and a glimpse of the future of . (Research update, incl. )
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Cystic Fibrosis Trust Oct 21
Replying to @david_mcg
Hi David, this decision is made by the EMA. We are committed to fighting for access to life changing drugs for all people with CF. You can read a little more about this here:
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Cystic Fibrosis Trust Oct 21
Replying to @CFcarer
Hi, would you be interested in being involved in shaping our upcoming mental health resources by sharing your thoughts & expertise? We’re keen to ensure that these resources reflect the experiences of people with CF & will help others. Email: involvement@cysticfibrosis.org.uk
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Cystic Fibrosis Trust Oct 21
Replying to @david_mcg
Hi, would you be interested in being involved in shaping our upcoming mental health resources by sharing your thoughts & expertise? We’re keen to ensure that these resources reflect the experiences of people with CF & will help others. Email: involvement@cysticfibrosis.org.uk
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Cystic Fibrosis Trust Oct 21
Replying to @CFRocker8889
Hi, would you be interested in being involved in shaping our upcoming mental health resources by sharing your thoughts & expertise? We’re keen to ensure that these resources reflect the experiences of people with CF & will help others. Email: involvement@cysticfibrosis.org.uk
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Cystic Fibrosis Trust Oct 21
It is great news that Jersey and Guernsey will now have access to . We know how difficult it has been for everyone who lives in Jersey and Guernsey to wait whilst roll-out has begun in other parts of the UK. We are focused on supporting access in the Isle of Man.
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