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Cambridge Rare Disease Network
Raising awareness & building networks to improve rare lives. Creators of RAREFest, RAREsummit, Companies Forum & local Unique Feet community
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Cambridge Rare Disease Network 15m
Its painful to conceive of the unfathomable loss of a child so loved, so full of courage & generous of spirit. We thank you & for your strength & the legacy you have left. We’ll keep fighting for the research & treatments those with need
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Cambridge Rare Disease Network 30m
So sad to hear this news Matt. You are all in our thoughts. We’ll forever be in yours and Bertrand’s debt for the incredible work you have done as a family to change rare lives. You’re all wonderful and Bertrand leaves a powerful legacy of love and hope x
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Cambridge Rare Disease Network 4h
Thanks for supporting ! One of the UK’s leading campus' where world-class & business come together to promote innovation & strengthen links between academia & the commercial world. We hope to see lots of you networking at on 28 Nov!!
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Cambridge Rare Disease Network Oct 24
Thank you Rare Disease International for helping bring together the community around the world. Looking forward to seeing you and your members at !
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Cambridge Rare Disease Network Oct 24
A huge thank you to our amazing media partners Global Dare Foundation, , Timothy Syndrome Alliance and for spreading the word about
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Cambridge Rare Disease Network Oct 23
Some lockdown art fun going on over in Wales today from and friends 😊 Say hi to our media partners!! We’re ... are you?
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Cambridge Rare Disease Network Oct 23
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Cambridge Rare Disease Network Oct 23
Replying to @Cambridge_Uni
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Cambridge Rare Disease Network Oct 23
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Cambridge Rare Disease Network Oct 23
How do lungs become scarred? How do we prevent it from happening? Questions patients with desperately need answers to. Dr clinical scientist shares her insights from rare research at . Get free tickets
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Cambridge Rare Disease Network Oct 23
Fortunately the only thing that might go wrong is creating a mutant fruit! Strawberry’s have feelings too though...
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Cambridge Rare Disease Network Oct 22
Our SPACE, your STORIES: A spotlight on ! has a virtual gallery seen by a global audience. Share your patient journey; display your scientific research; play your rare disease film. http://
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Cambridge Rare Disease Network Oct 21
Thank you for sharing our story and helping raise awareness about and in the new issue of
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Cambridge Rare Disease Network Oct 21
Live DNA extraction at with clinical geneticist . In Melita's words "What could possibly go wrong?" Come and meet the DNA doctor on 28 Nov
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Cambridge Rare Disease Network Oct 21
author of Haynes DNA Manual joins Lucy McKay CEO of at to play DNA Docs! What does DNA look like? Can we alter our genes? Can we make dinosaurs? Join them live to extract from a strawberry!
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Cambridge Rare Disease Network Oct 20
The reality of living with a . Sarah Lippett, aka , is creating an immersive exhibit for you at showing her use of comic books & illustration to share her journey. But under the quirky sketches lies the harsh reality
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Cambridge Rare Disease Network Oct 20
There’s such a generosity of spirit in sharing tough times with others... helping them feel less isolated and lessening the burden through sharing. Thank you and we’re thinking of you
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Cambridge Rare Disease Network Oct 20
Do you like cookies? How about science? research? real-life stores? Dana from will be joining us at with her delicious cookie baking & sprinkles spreading joy & inspiration as she bakes & shows you how she's raising funds for
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Cambridge Rare Disease Network Oct 20
BagsOfHelp is a local community grant scheme from and throughout October-December they’re providing grants of £1000 to support children and youth focused projects. We benefited from a grant; find out if your organisation would too:
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Cambridge Rare Disease Network Oct 20
Replying to @UKTSA
Welcome on board !! Thanks so much for sharing and we can’t wait to see you on the 28th!
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