Twitter | Search | |
alexandra milloff butler
37 year old mother, wife, daughter, pediatrician. Recently diagnosed with a rare brain cancer, and now fighting for a cure
245
Tweets
150
Following
26
Followers
Tweets
alexandra milloff butler Nov 6
Writing about my coffee routine on the blog today.
Reply Retweet Like
alexandra milloff butler Nov 1
Hi! I also have AO3, and am raising money to find a cure- working w/ . Can you help? Can you share?
Reply Retweet Like
alexandra milloff butler Nov 1
Reply Retweet Like
alexandra milloff butler Nov 1
I’m almost to 30K raised for ! My hope is that my survival will improve with this research, but hope is not enough. Research needs funding! Can you please help? Can you share?
Reply Retweet Like
alexandra milloff butler Oct 30
Replying to @busy_butler
4/ Occasionally he’ll demand more attention, and that isn’t so easy. On those days my wellness suffers because I’m living in a pile of Sadness. This struggle gives the elusive “life balance” new meaning and complexity.
Reply Retweet Like
alexandra milloff butler Oct 30
Replying to @busy_butler
3/ And while he is super messy— easily can destroy a room— I’ve gotten a lot better at acknowledging him, then sweeping up so I can move on with my day in a way that doesn’t revolve around him all the time.
Reply Retweet Like
alexandra milloff butler Oct 30
Replying to @busy_butler
2/ I’ve been told it isn’t fair to either of us if I just ignore him. I need to talk about him and allow him to sit on the couch with me. I can’t ask him to go— he has made it clear he will always be here.
Reply Retweet Like
alexandra milloff butler Oct 30
1/ my wellness these days directly correlates to how well I’ve cleaned up after my new friend, Sadness. He moved in the day I heard “incurable brain cancer,” and unpacked his suitcase by flinging all his stuff around the house.
Reply Retweet Like
alexandra milloff butler Oct 28
Donations to this research will allow us to push forward faster to a cure for . I know we will get there— it is only a question of how long it will take. . Please RT to spread the word.
Reply Retweet Like
alexandra milloff butler Oct 24
Stable MRI!! Woo!!
Reply Retweet Like
alexandra milloff butler Oct 24
Oncology MA asked me, “how’s your day looking?” as she takes my vitals. “We’ll see” was my response.
Reply Retweet Like
alexandra milloff butler Oct 22
PSA: please do the right thing and make sure the music available in your MRI scanner is ad-free.
Reply Retweet Like
alexandra milloff butler Oct 21
Replying to @busy_butler
Reply Retweet Like
alexandra milloff butler Oct 21
Replying to @busy_butler
It could have been this: Doc 1: wishes he could trade places with his wife without hesitation. Tired. On call. Head up. Doc 2: 1’s wife. Cancer patient, currently in the thick of it. Sadness in waves- one here now. Doc 3: In hospital, pager going off, new patient is here.
Reply Retweet Like
alexandra milloff butler Oct 21
Replying to @busy_butler
Or, maybe it was: Doc 1: Resident, just at the brink of career, excited for future, tired. Doc 2: smart, kind and caring surgeon. Gets it. Teaches with humor. Doc 3: 2’s wife. A sigh overheard in the background on the phone— maybe something is going on?
Reply Retweet Like
alexandra milloff butler Oct 21
Last night I was in a tiny play about 3 doctors: Doc 1: crying almost sobbing thinking about the loss of her career to cancer. Doc 2: 1’s husband. watching his love suffer, comforting her, suffering himself. Doc 3: The Sr. resident who calls to tell Doc 2 about a new admit.
Reply Retweet Like
alexandra milloff butler Oct 18
hi! I’m a mom in PDX, recently diagnosed with a rare Can you help share my story?
Reply Retweet Like
alexandra milloff butler Oct 18
I’m a doctor, now also a patient with no clear path to cure. I’ve started a blog about it- take a look!
Reply Retweet Like
alexandra milloff butler Oct 18
Reply Retweet Like
alexandra milloff butler Oct 16
— can you help share my story? We need better treatments for
Reply Retweet Like