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Atypical HUS
Official account of the Atypical HUS Foundation- the only 501(c)3 in the USA dedicated to supporting and sharing info to aHUS patients and caregivers.
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Atypical HUS Oct 19
Helpful info!
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Atypical HUS Oct 18
Happy to be part of this!
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NAC Oct 17
Did you know there are 30M Americans affected by rare diseases? Take the survey
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Atypical HUS Oct 16
Scott Gottlieb, Commissioner speaking about drug approval and access and the future of orphan drugs....
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Atypical HUS Oct 16
Scott Gottlieb, Commissioner speaking about drug approval and access and the future of orphan drugs.
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Atypical HUS Oct 16
Excited for an intensive 2 day discussion of health policy, rare disease & orphan products, & strategizing to...
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Atypical HUS Oct 16
Excited for an intensive 2 day discussion of health policy, rare disease & orphan products, & strategizing to improve our patient org.
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Atypical HUS Oct 14
Interested in knowing more about the genetics of aHUS? Did you know that the foundation has a YouTube channel?...
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Global Genes Oct 13
Do you care for someone rare? Take the caregivers survey
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Anne Bruns Oct 12
The first industry-dedicated meeting that focuses on the research and development of complement therapeutics. Use code HUS10 and get 10% off registration. See you there!
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Atypical HUS Oct 11
Replying to @kidney_boy
Me!
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Atypical HUS Oct 11
Excited for another great year at w/ . Stop by to learn about our patient registry & 2018...
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Atypical HUS Oct 11
Excited for another great year at w/ . Stop by to learn about our patient registry & 2018 Scientific Conference.
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NORD Oct 11
retweet to share: 30 M Americans live w/ a & more than half of those are children:
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Atypical HUS Oct 10
It’s so that time of year for insurance signups, changes and new coverage! Here’s some tips.
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Atypical HUS Oct 9
~Motivational Monday~ Your past has not defined you, destroyed you, or defeated you; it has made you STRONGER....
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coagulation lab Oct 5
When it comes to complement genetic testing, few labs are sequencing more clinical patients than we are
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Atypical HUS Oct 2
We are doing a monthly survey with aHUS patients to get to know each other a little better. We will be sharing it...
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Atypical HUS Sep 29
~Friendship Friday~ As we plan our 2018 aHUS Conferences, we are once again made aware of the magical and life...
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Atypical HUS Sep 27
Does having a rare disease affect your family? Your role as a caregiver? By taking this survey you can share your...
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