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ALS Advocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
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ALS Advocacy 50 min
Odgovor korisniku/ci @NeurologyToday @JAMANeuro i 3 ostali
Many thanks.
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ALS Advocacy 1 h
Odgovor korisniku/ci @CoreyPolen @LauraMclinn i 3 ostali
Agree with Corey on thanks for the ALS Caucus. And NIH funding! I'll be talking to him next week about those plus CDC ALS Registry concerns.
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ALS Advocacy 2 h
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STAT 2 h
The drug has been tried, tested — and failed. Repeatedly. So why did CODA Biosciences just buy it?
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ALS Advocacy 2 h
Odgovor korisniku/ci @ArrestALSNow
Thanks!
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ALS Advocacy 2 h
cc:
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ALS Advocacy 3 h
Not much on neurological diseases. ?
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ALS Advocacy 3 h
ALS is unsafe. When data safety monitoring boards view data in a trial looking for "unsafe" situations, do they ever consider that people on therapy who are improving or stable are a lot safer than those not getting the therapy?
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Maurice 20 h
Nice slide on capacity vs potential demand in NIH talk
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Girl Travelin Alone 4 h
A memory from the days of little boys, Christmas trees and our first tiny house. When talking we were “lucky” - at diagnosis our kids were grown. So I continue. To hope. To fight (not argue) for an treatment. A cure.
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Brian Wallach 4 h
There is not a red state version of ALS and a blue state version of ALS. There is only ALS. There is not a pro-ALS group and anti-ALS group, there is 1 movement to end ALS. We speak with different words but seek the same future. We fight for each other and will be the cure.
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ALS Advocacy 4 h
Worth taking 2 minutes to read this in detail before deciding that this is a panacea for ALS... 2 minutes are all it will take. Executive Order on Advancing American Kidney Health via
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ALS Advocacy 4 h
Odgovor korisniku/ci @NeurologyToday @JAMANeuro i 3 ostali
Link? Thanks.
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PBS NewsHour 4 h
“80 percent of the raw materials used by American drug companies to make generic drugs come from China,” reports
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ALS Advocacy 4 h
Odgovor korisniku/ci @WSJhealth @WSJ @PhRMA
Scroll down to "c" -- Nobody titled "caregiver." Scroll down to "p" -- Nobody titled "person with _____" I know people w ALS and caregivers who would add value to this conference and would would learn a few things, too.
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ALS Advocacy 4 h
. Do you provide any scholarships for patients and caregivers for this significant conference? You are missing important stakeholders and experts in the conversations. Thank you.
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ALS Advocacy 8 h
Jeff Bam Bam Schmeltzer -
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ALS Advocacy 8 h
Hamburg Township Trustee Jim Neilson dies after battle with Lou Gehrig's Disease via
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ALS Advocacy 8 h
Thank you, Bubba Watson commits to the 2020 Travelers Championship via
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ALS Advocacy 8 h
CytRx Corporation Highlights Updated Arimoclomol Milestone Guidance Provided by Licensee Orphazyme A/S | BioSpace
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