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Action for M.E.
M.E. is a neurological condition affecting 250,000 people in the UK. We take action to end the ignorance, injustice and neglect faced by people with M.E.
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Action for M.E. retweeted
Hannah 13h
On the rare occasion that I actually go out, I prepare myself by putting on ‘emotional armour’ and tend to dread the whole experience.
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Action for M.E. 13h
What is one thing you wish people knew about & illnesses? "Even though we look good on the outside it does not mean we feel good on the inside. We put on masks to protect ourselves so that we don't face further judgement." ➡️
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Action for M.E. 15h
🎄Have you had a look at our card collection yet?🎄 We have eight designs available for you to choose from ranging from festive guinea pigs to happy snowmen. Take a peak➡️
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Action for M.E. Oct 21
Early-bird registration to the UK CMRC conference 2020 is now open. This is an opportunity for researchers, clinicians & to learn more about the latest , meet potential collaborators & contribute to future developments. Learn more➡️
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Action for M.E. Oct 21
Replying to @pauluslemonus
Hi , unfortunately, we don't have the expertise to advise on this subject. We would recommend getting in touch with your GP who will be able to offer advice and signpost you to local carers services and nurses who can support you in administering medication.
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Action for M.E. Oct 21
Whilst our pilot advocacy service is only available in the Midlands & South West we also have a self-advocacy guide: If you need an advocate you can get in touch with our Info & Support team who can signpost you to local services: 01179279551
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Action for M.E. retweeted
Hannah Oct 19
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Action for M.E. retweeted
Taliana | Finn's Jake Oct 18
5 of these apply to me And if I wanted kids, all 6 would apply I truly don't want kids but sometimes I do wonder if my disinterest in romantic relationships is a true disinterest or something born out of necessity
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Action for M.E. retweeted
tired abbey Oct 18
Seven out of seven! My social contact technically exists but the only person I see daily is my mum, who is my main carer. I see the sister I live with once or twice a week. I see my other sister every couple of months. And I see friends maybe three or four times a year.
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Action for M.E. retweeted
Phoebe Oct 18
I knew since I was a teenager that I didn’t want children, I’m 39 now and I’ve never changed my mind. I would however have liked the option to be able to change my mind, ME removed that possibility though.
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Action for M.E. retweeted
Hayleigh Deadman Oct 17
I can tick all of these... I might have days where I’m affected less, but there’ll be payback somewhere down the line 🌻
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Action for M.E. Oct 18
Replying to @fibrofudge
Hi , whilst our research focus is biomedical we acknowledge that it's also essential to highlight the impact of chronic illnesses on mental health. Articles from our magazine might offer some ideas? Isolation Anxiety
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Action for M.E. Oct 18
"My twin sister, Helen, has which has manifested into the stage where she can no longer live a normal functioning life. Action For M.E. is the charity who help her & thousands of others, whose lives have been robbed by this illness." Meet our ➡️
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Action for M.E. retweeted
✨ Katie May ✨ Oct 16
so, this week is the reality of having an invisible illness is that on the outside, you look fine but your insides are attacking you. from brain fog to chronic fatigue and constant pain - you can’t see it and it’s really hard to explain at times …
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Action for M.E. retweeted
Sam Bromiley Oct 18
This week I presented data on the impact has, as well as the lack of appropriate healthcare and support for people with the condition. Thank you to and for coming along and responding to these findings
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Action for M.E. retweeted
♿️ Mummying and M.E. ♿️ Oct 18
Please read this thread. If it wasn’t obvious enough how much impacts lives, this makes it even clearer. Are there any journalists willing to cover this and get the word out there in mainstream media?
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Action for M.E. Oct 18
Replying to @mummyingandme
Thank you for sharing 😁💙
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Action for M.E. Oct 18
Replying to @G4vin_
Thank you for sharing Gavin 😁
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Action for M.E. retweeted
Gavin Pearce Oct 18
Excellent research by people need to look at this to understand the devastating effects have to endure. This research needs to be shared far and wide. needs to be a protected characteristic
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Action for M.E. retweeted
Dr. Amy Stenehjem Oct 16
This week is . Please take a moment to think about the activities you do each day with ease, such as taking a shower. Those with often struggle to do what others take for granted and approach each day with courage and dignity.
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