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aHUS Alliance Action
aHUS Global Action to Connect * Inform * Collaborate
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aHUS Alliance Action 7h
Exploring the affordability & cost of treating a person diagnosed with the atypical HUS. A look & comparative analysis of therapeutic vs re , economic burden.
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aHUS Alliance Action Nov 21
Una enfermedad ultra rara, Síndrome Hemolítico Urémico Atípico es una enfermedad potencialmente mortal y crónica que afecta a pacientes de todas las edades. SHU Atípico:
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aHUS Alliance Action Nov 20
disease patients and their families face troubled times with faith & hope, together with dedicated & skilled medical professionals. In support of their battles, we join in as they whisper or shout: !
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aHUS Alliance Action retweeted
Hopkins Nephrology Nov 13
Dr. delighted us during Renal Grand Rounds with a “Comprehensive Analysis of Genetic Variants in aHUS- from Bench to Bedside”. She shared her fantastic work on the genetics of aHUS, and a proposed algorithm that could be used in Kidney Transplant Patient Evaluation
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aHUS Alliance Action Nov 20
Management of thrombotic microangiopathy in pregnancy & postpartum: On Diagnosis of pregnancy-associated TMA & approach to /postpartum-associated Fakhoui et al
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aHUS Alliance Action Nov 19
Early & accurate diagnosis of the atypical HUS makes a huge difference in patient outcomes. 2 cases & a comparison when one patient takes 34 weeks til diagnosis
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aHUS Alliance Action Nov 18
atypical HUS can be triggered by infections. re & : Add to the list of the potential triggers of relapse. Be , thx
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aHUS Alliance Action Nov 18
Qu’est-ce que le syndrome hémolytique et urémique atypique: ? Vivre avec la maladie rare SHU atypique – En connaître les bases
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aHUS Alliance Action Nov 17
Immunosuppression: Reactivation of BK Virus as a complication which can cause of dysfunction & loss.
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aHUS Alliance Action Nov 17
Interesting article, w/ its objective to "evaluate the association among activation, endothelial damage and disease severity or activity in patients" & notes that "Complement mediates the response to "
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aHUS Alliance Action Nov 16
Jump start your memory about and the effect of on the system. Basic info & context, w/ links to & IR & press releases.
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aHUS Alliance Action Nov 16
Key milestones re Moderna’s vaccine candidate mRNA-1273 What's & how does this vaccine approach work re the system?
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aHUS Alliance Action Nov 15
Harnessing the power of - a look back at 2020 and its ability to inform & engage patient groups as well as medical professionals. On integrating to improve outreach & understanding.
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aHUS Alliance Action retweeted
HHS Office of the Chief Technology Officer Oct 30
Today, and launched the Prize to radically transform kidney care for the 850 million people living with kidney disease. Learn more about the competition and teaming opportunities:
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aHUS Alliance Action Nov 14
Mental Health during the . Times are tough, but so are we! An article with resources.  (FMI, check with experts in your nation re current status & updates)   
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aHUS Alliance Action Nov 13
During this sparkling festival of lights, may your life be illuminated with all that brings you joy. Happy Diwali !
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aHUS Alliance Action Nov 12
The atypical HUS community continues to have interest in re its potential as a therapeutic for mediated & like too.
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aHUS Alliance Action Nov 12
There are many challenging & bittersweet days for people living with a like atypical HUS. May you shine on & persevere – you’ve got this! .
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aHUS Alliance Action retweeted
Am Soc Ped Neph Nov 11
Efficacy of eculizumab in coexisting C3G/aHUS
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aHUS Alliance Action retweeted
Alexion Nov 4
We’ll be presenting data from our complement program, including and data, at the virtual (December 5-8).
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