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Myositis UK
Myositis UK is a registered charity for those affected by , , and .
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Myositis UK Sep 21
Congratulations Alex!
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Myositis UK Sep 19
Successful treatment of anti-MDA5 antibody-positive refractory interstitial lung disease with plasma exchange therapy
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Myositis UK Sep 19
Australian couple donate $1 million to research Inclusion Body Myositis!
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Jo Goode Sep 11
A new group for people with Myositis & their family members, Myositis World Support Group 😊 Connect with people who understand around the world 😀
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Leonard Calabrese Aug 6
The triple M (myositis/myasthenia/myocarditis) immune adverse event from cancer immunoRx should be on the radar of every hospitalist and ER doc (and ONC) -lethal but treatable
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Rheumatology update Sep 3
Association of Ultraviolet Radiation Exposure with Dermatomyositis in a National Myositis Patient Registry - Parks - - Arthritis Care & Research - Wiley Online Library
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Kim Lauper 🇨🇭 🇬🇧 🇪🇺 Sep 5
I am not the only one from Manchester at the Swiss congress of ! is presenting an update on diagnostics and classification in .
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Jo Goode Sep 5
My 1st Tweet 😀 Early 4am start to travel to Kings College Hospital for the 1st day of my regular IVIG treatment for Dermatomyositis. So really appreciated my morning coffee in my cup 🙂
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Hector Chinoy Sep 3
Proud to be part of the largest myositis RCT published to date. Safety & efficacy of intravenous bimagrumab in inclusion body myositis (RESILIENT): a randomised, double-blind, placebo-controlled phase 2b trial
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NEANU 2020 Sep 2
Neurologists taking over the Manchester Myositis Research Group!
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Myositis UK Sep 2
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Cure IBM—Inclusion Body Myositis Aug 28
Inclusion body myositis researchers: the Orphan Disease Center at the University of Pennsylvania is offering a $102,430 research grant for the study of IBM. The grant is made possible by Team Cure IBM in the Million Dollar Bike Ride. Information here:
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NCA Research NHS Aug 29
Congratulations to expert and rheumatologist and , who's been appointed Professor of Rheumatology and Neuromuscular Disease | | It's very well deserved and we're all thrilled!
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Ma Myosite Aug 21
Ouverture d’un groupe international de soutien pour les patients myositiques, (groupe fermé sur Facebook). Initiative de Joanne Goode de . Myositis patients join the myositis world support group on Facebook.
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Alison Belshaw Aug 20
My latest post can be found here. My journey through diagnosis and treatment of at
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Myositis UK Aug 14
Singer/songwriter Billy Joel bringing awareness to Myositis with Peter Frampton 😃
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Johan Lim Aug 12
"Bimagrumab showed a good safety profile, relative to placebo, in individuals with inclusion body myositis but did not improve 6MWD." 
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Alexander Oldroyd Aug 7
Check out our reply to letter by about our recent TIF paper in Highlights important research questions - - When should we screen? - How should we screen? - Does screening impact outcomes?
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Alison Belshaw Aug 7
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Myositis UK Aug 5
Welsh artist Peter Morgan is kindly donating a signed/numbered framed print to raise money for Myositis UK 😬 Please message if interested. His paintings are scenes of Wales & Cornwall. Prints retail from £145.00 framed (Print size 28cm x 28cm)
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