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Spina Bifida Assn.
Working to promote the prevention of Spina Bifida and enhance the lives of all those affected.
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Spina Bifida Assn. 13h
We're conducting research to learn what issues are most important to you or to someone close to you with . Complete this survey to help improve care and research . The survey closes on April 29, 2019.
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Spina Bifida Assn. Apr 16
The clock is ticking! Tomorrow is the deadline to book your hotel for , and the final day to register for the event is April 22nd. We hope to see you there!
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Spina Bifida Assn. Apr 14
Only two more days to take our research survey! Your answers will help us determine areas for future research on Spina Bifida. The survey closes on April 16, 2019.
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Spina Bifida Assn. Apr 11
Have you joined SBA's campaign yet? Our next drawing for a $40 gift card to the retailer of your choice is coming up in 4 days (April 14). Become a Campaign Captain now & give or raise at least $4 & you could be our next winner. Visit .
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Spina Bifida Assn. Apr 11
We’re conducting research to learn what issues are most important to you or to someone close to you with Spina Bifida. Your answers will help us determine areas for future research on Spina Bifida. The survey closes on April 16, 2019.
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Spina Bifida Assn. Apr 11
: Missed the SB-YOU webinar, Take Care of Your Mental Health? Sit back, relax and catch the recording here: Questions? Email jpanlener@sbaa.org
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Spina Bifida Assn. Apr 10
It's and it's also . We are so appreciative of our many Walk-N-Roll volunteers. You are the reason these events are so successful!
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Spina Bifida Assn. Apr 9
That's a wrap on Donna's testimony! She was an incredibly eloquent spokesperson. We are so proud of her efforts and commitment to increasing funding for .
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Spina Bifida Assn. Apr 9
" I want the opportunity to grow old enough to see grey hairs on my head and more wrinkles than I can count. I want the opportunity for all of us to grow old enough to see wrinkles on our faces. "
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Spina Bifida Assn. Apr 9
" I love my life. I'm very proud to be a woman with . But, as much as I love my life, I don't want more babies to be born with bifida."
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Spina Bifida Assn. Apr 9
" I don't live in fear of my ."
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Spina Bifida Assn. Apr 9
" I am part of the first generation to survive adulthood."
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Spina Bifida Assn. Apr 9
Donna is up now to testify to the about increasing funding for related causes.
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Spina Bifida Assn. Apr 9
Testimony is back in session
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Spina Bifida Assn. Apr 9
Members have taken a break to vote. Donna will be up later than originally scheduled. Stay tuned!
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Spina Bifida Assn. Apr 9
The hearing has officially started!
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Spina Bifida Assn. Apr 9
There is still time to register for our Mental Health Webinar Tomorrow ! Our presenters will talk about: Why caring for your mental health is important, Ways to address your mental health needs, and more! Free to Register: .
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Spina Bifida Assn. Apr 9
Today at 3: 15 p.m. , Donna Jones, an adult with is testifying in front of of the Appropriations Committee at the United States House of Representatives. You can watch the live stream here:
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Spina Bifida Assn. Apr 7
We’re conducting research to learn what issues are most important to you or to someone close to you with Spina Bifida. Your answers will help us determine areas for future research on Spina Bifida. The survey closes on April 16, 2019.
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Spina Bifida Assn. Apr 1
Only 13 more days to get the discounted hotel rate for our advocacy event, Teal on the Hill! This event is open to the entire community!
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