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The PSP Association
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can 🧠
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The PSP Association 10h
Thank you Jen Blanchard for your valiant abseiling efforts in raising over £1000 for
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The PSP Association Jul 12
Check out our new tea party packs and raise money for PSPA
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The PSP Association Jul 4
To mark our 25 years anniversary, we have created a little animation showing some of the highlights throughout the years. We want to thank you for your support, together we remain committed to fighting PSP & CBD.
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The PSP Association Jul 3
THREE LAST MINUTE PLACES AVAILABLE for the now sold out taking place on 21st July. Miss out on the marathon? Join us for the 10k instead. Get in touch with sarah.day@pspassociation.org.uk to join
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The PSP Association Jul 2
For our 25th anniversary, Julie Bartrop and her partner Nick will be paddling 25 miles down the Stour River in Suffolk for PSPA. Faced with strong tides, sandbanks, lumpy seas and large ships it will not be easy. To support the couple go to
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The PSP Association Jul 1
It really is the simple things to take pleasure in! shares her brother's first outing from the nursing home in 9 months. In the face of PSP or CBD family time is more important than ever.
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The PSP Association Jun 28
Here's a peek at our editorial meeting for the next edition of PSPA Matters. We’d love to hear if you have any thoughts or ideas on what you’d like to see in our magazine. Either comment below or message us with your ideas.
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The PSP Association Jun 28
This is great news - such an important topic!
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The PSP Association Jun 27
Replying to @PSPAssociation
Click on the links above to find your nearest event. Pledge to raise at least £100 and we’ll send you a running vest and a special medal once you've completed your challenge! If you would like to get involved please contact fundraising@pspassociation.org.uk or call 01327 356132.
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The PSP Association Jun 27
If you love to run with your four-legged friend why not join a Dog Jog. Dog Jog is a series of jogging events for dogs and their humans. Dogs don’t worry about getting a personal best, and at this event, you won't need to either.
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The PSP Association Jun 27
We have limited places in The Big Fun 5K running from July – October across the country. To secure them you’ll have to move fast! From start to finish this no pressure run is focused on having a good time and enjoying the day with your family and friends.
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The PSP Association Jun 26
We are constantly surprised at the somewhat unusual things people do to raise money for PSPA. 55 miles on a penny farthing - this has to be a first!
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The PSP Association Jun 26
That is wonderful! Thank you so much. Good luck for Sat and please send us some photos if you can - we would love to share them!
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The PSP Association Jun 24
2018 marked a huge shift for PSPA. It was the year of more. We raised more money, supported more people and educated more health professionals thanks to you and your continued support. To read our latest annual review please visit
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The PSP Association Jun 24
Our amazing never rests!
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The PSP Association Jun 24
This just shows the devastating impact of PSP. We will not rest until we have found effective treatments to slow, and ultimately, stop PSP & CBD.
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The PSP Association Jun 21
Replying to @eramosman
We are thrilled to have you part of it!
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The PSP Association retweeted
Andrew_PSPA Jun 20
A really good catch up this morning with Prof Huw Morris at UCL about patient advocacy. Health & social care professionals are giving pharma the same messages as about managing clinical trial patients’ expectations, and keeping them informed.
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The PSP Association Jun 21
Replying to @mickwalker
That is such brilliant news! And we loved your film. Fingers crossed!
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The PSP Association Jun 21
Final few places remain for the Royal Parks Half Marathon on 13 October. Entry is £20 and runners must pledge to raise at least £395. Interested? Please email on fundraising@pspassociation.org.uk or 01327 356132.
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