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NSPKU
The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see
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NSPKU retweeted
BCH Metabolics 4h
Morrisons Smiley Stars: 40g =1g protein (1 PKU exchange)
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NSPKU 3h
Replying to @Apex_Art
Witty!
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NSPKU retweeted
Kate Learoyd 6h
In Washington celebrates journalism and also citizen activists. I love the story of Moms Against Drink Driving (Get MADD). 😡The anger and activism of people affected by access to rare disease drugs isn’t going away soon. Power to us ✊
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NSPKU retweeted
BCH Metabolics 3h
Tesco Tropical Ice Creams, 1 ice cream =1.2g protein (1 PKU exchange)
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NSPKU retweeted
PKUlulu 9h
2 days until I get a lifechanging drug that ... A - all UK PKUERS should have access to. B - I should have been getting for the last ten years or so. How many emotions am I feeling right now? Answers on a postcard please.
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NSPKU retweeted
NSPKU 6h
Replying to @PKUFamily @Al_J_Watson
No. Completely irrational. Check out this link, anyone who is interested:
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NSPKU 6h
Replying to @PKUFamily @Al_J_Watson
No. Completely irrational. Check out this link, anyone who is interested:
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NSPKU retweeted
Kate Learoyd 6h
And treatment only got started in the late 60s. Lifelong treatment is not covered by free prescriptions; I cannot see any rational distinction between what’s free and what isn’t. It’s not actually rational at all is it?
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NSPKU 6h
My week on Twitter 🎉: 96 Mentions, 10.1K Mention Reach, 159 Likes, 63 Retweets, 58.1K Retweet Reach. See yours with
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NSPKU 6h
Happiness could be a nice Rose arrangement. For anyone who’s had a tricky week/day/month or year... Thank you to my mum!
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NSPKU 6h
Very helpful information, thank you 😃
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NSPKU retweeted
Jessica Brown 7h
When your shepherds pie tea just wasn’t enough... you need chips for supper!
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NSPKU 6h
No apologies required at all.
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NSPKU 7h
Thank you it isn’t; we have been consulting with some HCPs who work in primary care, prescription Advisor capacity etc and no one has mentioned it...... thank you for flagging. For investigation 🤓🤓🤓
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NSPKU 7h
This is very interesting: “you can only name one contractor”.... thank you Julia Something to consider & investigate further.
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NSPKU 8h
Thank you; v useful advice
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NSPKU 9h
Replying to @ElizabethRoper1
Hmmm. Further discussion needed, shall we email &/or ring?
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NSPKU 11h
Replying to @maliet90
Thank you! Kind words 🙂
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NSPKU 11h
This would make a great food based gift for anyone w or someone returning to diet perhaps? There’s dates, a mango, whole pineapple.... very smartly arranged & very sturdy re-useable hamper tray Quite exciting! 🍍🍍🍍🍇🍇🍇🥭🥭🥭😍
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NSPKU retweeted
Low Protein Connect Jun 14
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