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Recoveringfrom MEcfs
Hit M.E wall in 2011. have now given up trying to recover.
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Recoveringfrom MEcfs retweeted
Open Medicine Foundation May 21
ME/CFS is a debilitating, life-changing disease. Watch patients describe what it's like to live with this devastating condition and find out why ME/CFS research is urgently needed.
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Recoveringfrom MEcfs 15h
didn’t realise until 2day we been ill the same time, 8 years & counting. u r no doubt feeling grief, your ambivalence is a form of mourning for the lost years. I understand, whilst being envious. Even if i recovered tomorrow i will never get my daughter’s childhood back.
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Recoveringfrom MEcfs 16h
they keep looking 4 white swans wen Popper said to prove a hypothesis that ALL swans r white u search 4 black ones. Your recovery proves that black swans exist, we are not mad, we have (probably diverse) physiological not psychological causes of our .E/CFS so happy 4 u
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Recoveringfrom MEcfs 16h
MEchanical Basis - Craniocervical instability, Atlantoaxial Instability, Myalgic Encephalomyelitis, ME, CFS they look for white swans when they should be looking for black, one black swan proves we are not psychologically ill we r physically ill!
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Recoveringfrom MEcfs retweeted
BlackDressDay May 20
Replying to @AMedicalJournal
There are too many silent sufferers. Not because they don’t yearn to reach out, but because they’ve tried and found no one who cares.
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Recoveringfrom MEcfs May 20
Heard you too and thought the same!
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Recoveringfrom MEcfs May 19
Replying to @bennessb
6 month wait for m.e diagnosis, but i knew lots of people who had had m.e so i was on the ball. The diagnosis resulted in zero help. In 8 yrs the nhs has offered me nothing. Probably helps having a diagnosis in claiming PIP, but only @ tribunal. Before that treated like liar.
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Recoveringfrom MEcfs retweeted
WomensEqualityUK May 16
Privilege is: f**cking up at work, quitting when you are held to account and then expecting a promotion
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Recoveringfrom MEcfs retweeted
Open Medicine Foundation May 16
ME/CFS patient Rivka Solomon () sat down with Dr. Ron Tompkins to talk about living with ME/CFS. OMF is proud to fund researchers like Dr. Tompkins, who are world-class scientists and also take the time to listen to and learn from patients.
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Recoveringfrom MEcfs May 17
Replying to @BP_plc
Not that BP has any agenda!!!!
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Recoveringfrom MEcfs May 16
I wish people could look that gracious when someone does them a favour!
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Recoveringfrom MEcfs May 16
Heartbreaking and should be scandalous!
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Recoveringfrom MEcfs May 16
surely it says more about the male concept of what women should look like and what makes a woman feel good than what the survivors of concentration camps were interested in? Can’t think of anything i wd want less after being starved abused and brutalised!
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Recoveringfrom MEcfs retweeted
Marianne Brooker May 15
Been talking to about my bright, brave mum, who died earlier this year. Her homemade t-shirt here reads: “I try hard to live a good life, I’m equally determined to die a good death”. She did her best against the odds, now we need to do more.
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Recoveringfrom MEcfs May 15
Replying to @OpenMedF
Yeah they are now ignoring us by referencing a contact form that isn’t visible!
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Recoveringfrom MEcfs retweeted
eva May 15
I am so glad this story has made an impact.
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Recoveringfrom MEcfs retweeted
BBC Politics May 15
Plaid leader Adam Price wants Welsh Remain voters to “lend their votes” to stop “Ripping us out of the EU will rip the heart out of our economy…We have to take it back to the people to keep Wales and the rest of the UK in the EU”
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Recoveringfrom MEcfs May 15
Replying to @Julia47709247
Where do you live? I had two people in my village in suffolk get m.e about the same time as me, my partner got it after moving to suffolk and my mother’s partner the same. I suspect chronic lyme as ticks very common in that area with marsh lands and we all walked lots.
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Recoveringfrom MEcfs May 15
Replying to @MEwarrior_au @ClrBlwrs
Ps and she has now been fully recovered for 14 years and looks after me and our ASD diagnosed child so not a stress free life!
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Recoveringfrom MEcfs May 15
Replying to @MEwarrior_au @ClrBlwrs
Yes, my partner. She was ill for 16 years, lots of symptoms i have she had, definitely not cfs, but other m.e profile symptoms as well as post exertionsl malaise.
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