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ME Association
Speaking up for people with ME/CFS – about 250,000 in the UK. Takes tweets directly from our website updates. RTs don't always indicate agreement.
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ME Association retweeted
Beth Alessandra Aug 17
Huge congratulations to all the people with who got their no matter the result, you are all incredible 👏👏
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ME Association retweeted
georgecommunitychamp Aug 17
Remember i posted about that charity Gatsby party? It made the papers! @superpoopedblog and her Mum did such an epic job they raised over £1,500 in the end. What a power team! 🌱 🌻 🌹 🌸 🌺
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Hannah Radenkova Aug 17
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Anna Kerr Aug 16
“Sickness doesn’t terrify me and death doesn’t terrify me. What terrifies me is that you can disappear because someone’s telling the wrong story about you.” from her film , a story of living with chronic illness told with compassion. Shame on you
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ME Association Aug 17
Congratulations Lucy! "Teenager Lucy Taylor had a shock when she opened her results and saw three As. For she has suffered with chronic fatigue syndrome for several years and was only able to attend high school part-time."
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ME Association Aug 17
Well done Katie, and well done to her school! "They let me take my exams at home and very kindly some teachers came to invigilate. I wouldn't have been able to do it without them and their support."
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ME Association Aug 16
My week on Twitter 🎉: 143 Mentions, 63.5K Mention Reach, 681 Likes, 393 Retweets, 508K Retweet Reach. See yours with
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ME Association retweeted
Paula Knight Aug 16
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ME Association retweeted
Definitely Not El0n Mu5k Aug 16
We lost another ME friend today, this popped up on my feed, seems very very apt.
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ME Association retweeted
Tony Britton Aug 16
' man is charity hero" (David Webb raising money for - thanks David!) | This Is Lancashire | 16 August 2018:
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ME Association Aug 17
We take a look at the mounting evidence for abnormal NK cell function in ME/CFS and explain what it might mean when they are dysfunctional.
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ME Association Aug 16
My week on Twitter 🎉: 143 Mentions, 63.5K Mention Reach, 681 Likes, 393 Retweets, 508K Retweet Reach. See yours with
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ME Association retweeted
Jessica Taylor-Bearman Aug 15
Normally, hospital consultants don’t really understand as there is little/no training in it, so suddenly it’s all in your head. However, this experience was so different. I had a neurology appt that I had been dreading and they actually believed in my symptoms!And said...
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ME Association retweeted
Jessica Taylor-Bearman Aug 15
Replying to @jayletay
That he could see that I was not making up my new symptom, believed in M.E. AND didn’t try to tell me that I was depressed! Instead, I’ve been put on different medication for my tremors. I felt elated to not have to fight to be believed.
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ME Association Aug 15
Do you experience the discomfort associated with dry eye syndrome? What have you found to be the most likely cause?
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ME Association retweeted
Hannah Radenkova Aug 15
We’re so chuffed, Tony! It’s actually just beat the £1500 mark now!
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Simon McGrath #mecfs Aug 14
Lipkin predicts real progress within 5 years: could well identify subtypes and some may be readily treatable. Possible clinical trial within 3 years. [From blog: Lipkin's Collaborative probe the impact of exertion]
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Simon McGrath #mecfs Aug 14
The Collaborative’s clinicians are Drs Levine, Montoya, Peterson & Bateman: part of a team inc Dr March and led by Dr Komaroff. The team will run exertion studies, also create an App to collect real time patient data.
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Tom Kindlon Aug 14
Thanks for all the birthday wishes. 👍 Had a quiet day yesterday. But on Sunday we had a nice family day, celebrating the birthdays of my sister and brother (they're twins) and myself. Also in the photo are two of my nieces and two of my nephews.
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ME Association retweeted
M.E. myself and I Aug 14
Sometimes I use a stick. Sometimes I'm wheeled. Sometimes I scoot. Sometimes I walk completely unaided. My body doesn't produce energy properly & the knock on effect of that is absolutely huge. My internal battery gets drained v quickly. Aids help.
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