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ME Association
We raise funds for biomedical research into M.E. and provide support, information and advocacy for people in the UK. RTs don't always indicate agreement.
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ME Association retweeted
Kirstie Blaik Dec 13
My gp is great. Very understanding, I think it's just the hopeless nature I'm struggling with. And lack of physical help (no family help). And worried sick about finances if I lose my job. It's the big unanswered questions that make this journey so difficult xxx
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ME Association retweeted
Ruth Fryman Dec 13
Clinical psychology will use CBT. Now I was having CBT when I became ill with Fibro/M.E and the psych helped me come to terms with the fact that I wasnt making it (g.p thought otherwise!) up and how to cope with altered life so it helped me at the time
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ME Association retweeted
Norfolk & Suffolk ME 20h
"My illness has been devastating, but what has come closest to destroying my spirit has been the way I have often been treated by the medical profession" Excellent piece. Read if you can.
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ME Association retweeted
Tony Britton Dec 12
recruiting new social media manager, 4 hrs a day, £800 a month, 3-months trial, closing January 14 | MEA website | 12 December 2018:
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ME Association Dec 13
We are looking to recruit someone to help expand our social media presence. Working from home, 4 hours a day during the week. Personal experience of M.E. required. Application deadline: Monday, 14th January, 2019.
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ME Association Dec 13
Replying to @WhatNewsScience
Oooppss... My bad. Shouldn't try to post while on the phone. Yes deadline is 14th January 2019. Thanks 😊
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ME Association retweeted
Dr Paul Williams MP Dec 10
I hope that everyone who works in health care who might ever care for someone who has ME/CFS gets to read this by my friend
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ME Association Dec 12
The ME Trust is looking for doctors to join its service. A doctor joining the team would be self-employed and may be able to offer just one session a month or up to a session or two a week.
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ME Association Dec 11
Would make a great gift for anyone at Christmas 🤶🎅😀
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ME Association Dec 11
We have updated & republished our M.E. Factsheet. It's a handy way of passing on what we know about this devastating disease. Available for FREE but please donate to our Christmas Appeal if able:
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ME Association retweeted
HelplinesPartnership Dec 11
We're looking forward to working with participants from 6 different helplines today including in London on our Supporting Emotional Service Users training. You can find out more and book on a future course on our website:
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ME Association retweeted
MoleyME Dec 10
They issued an apology and leaflet withdrawal now
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ME Association Dec 10
Dr Shepherd has updated our medical leaflet on - probably the most prescribed symptom management drug in ME/CFS. Includes recent patient feedback about experiences with the drug and its' side effects.
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ME Association retweeted
brendan buiteach Dec 6
This was my clinic to , attended mild left severe , like a bunch of kids speaking to you like a child , outdated and dangerous, place needs shutting down , they discharged me when severe with a letter saying I knew what I needed to do to get better
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ME Association retweeted
Wendy Thompson Dec 6
'can be managed effectively ' 😤😡😤😡😤 try telling the that!!!! This is exactly why I was discharged from this service as I was unable to keep appointments due to the effects of my ME so instead of support I got a letter discharging me!!!!
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ME Association retweeted
Louise Dec 6
Liverpool Broadgreen Clinic diagnosed me. After the seminar was told they offer CBT, accept within so many weeks or be discharged.
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ME Association retweeted
Jamie McMillan Dec 7
wondering if you could RT this? Am looking for people with recent experience of CBT & lidocaine. Many thanks.
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ME Association retweeted
Kirstie Blaik Dec 7
Too sick with M.E symptoms to attend the Harris preview tonight. My failure to attend doesnt diminish my desire to attend tonight. Thoughts to the due to M.E/ CFS. Attendees and artists enjoy tonight
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ME Association retweeted
Phil Murray Dec 7
Thinking of having a flu vaccine this winter? It's a tricky choice, if you've got ME/CFS, but has great advice here, from Charles Shepherd.
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ME Association retweeted
Vannah Dec 6
Cover page here.
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