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ME Association
We raise funds for biomedical research into M.E. and provide support, information and advocacy for people in the UK. RTs don't always indicate agreement.
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ME Association retweeted
Daniel Moore Oct 27
Men, if you're struggling with the emotional side of it's ok to seek support and get counselling/therapy. I did and it has helped me a lot. Just so some research on any prospective counselor before you embark.
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ME Association retweeted
Katie Meehan Oct 27
If your friend or loved one has a chronic illness, please do not tell them how to ‘get better’ or ‘just try this’ because it’s not only incredibly unsupportive but it’s also degrading and victim blaming. People don’t have long-term illnesses from lack of trying to get better.
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ME Association Oct 27
The ME Association Cook Book! Nutritious, Delicious, Trouble-Free Recipes...
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ME Association Oct 27
Ian tells how he had to lower his sporting horizons after being struck down with M.E.
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ME Association Oct 26
Sarah returns to the beginning for her 'Super Six' challenge for the ME Association
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ME Association Oct 24
ME Association response to BACME Position Statement on the Management of ME/CFS
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ME Association Oct 22
A new medical education initiative has launched in Scotland by a collaboration of charities including the ME Association and the CMRC Medical Education Group. Read here:
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ME Association Oct 20
Replying to @MEAssociation
In people who go on to suffer from ME – and what’s possibly happening to those with Long COVID, too - the immune system response “hasn't switched off,” and so the resulting fatigue goes on and on.
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ME Association Oct 20
This is “extremely common” according to Dr Charles Shepherd, Medical Adviser at the ME Association, who notes that most of us will have experienced some degree of it in our lives.
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ME Association retweeted
Daniel Moore Oct 18
I was a 12yr old when this news came out and I was under a dodgy child psychiatrist who had made me lift medicine balls and ride exercise bikes. I was genuinely scared they were just going to turn up, take me away and throw me in a swimming pool.
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ME Association retweeted
The Real M.E. Oct 19
Replying to @MEAssociation
I'd go further than medical disbelief - medical ignorance and BPS dominance. There is more than enough information available to show ME is biomedical but these discredited theories are still upheld as the gold standard. "eminence based" science and classism must end.
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ME Association retweeted
Phil Stewart Oct 19
Replying to @MEAssociation
To feel as though I have to explain myself to be believed. I am an honest person and this hurts. I get it. On my worst days I look in the mirror and see I look ok. People believe in the concept of oxygen. Even though they can't see it, it's there.
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ME Association retweeted
Peta Oct 19
Replying to @MEAssociation
Friends & relatives not understanding that to manage spending an hour with them requires a lot of rest (physically & cognitively) for days before & days after I see them.
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ME Association retweeted
Richard Naylor-Jones Oct 19
11 years with ME - help raise awareness- things are changing but we all need to be more patient & kind - not all disabilities are visible.
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ME Association retweeted
simon graingerboy Oct 19
The look of suspicion on peoples faces when you tell them you have ME. Somebody once called it 'My Excuse'. I worry it will be the same for those who are struggling post Covid.
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ME Association retweeted
🏴‍☠️⬛🌏🌊Antifa Abe⬛🌏🌊🏴‍☠️ Oct 18
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ME Association Oct 19
Invisible Disabilities Week. Where we discuss, debate and inform others on what life is like with a disability that you cannot see. There are certain challenges that we face due to our ME being invisible, what do you find is the biggest challenge that you face?
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ME Association retweeted
Invisible Disabilities Association Oct 18
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ME Association retweeted
Tony Britton Oct 17
Anyone want to join the team? We are an charity and have some places available for 23rd May next year. Please contact me if you are interested.
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ME Association Oct 15
Scottish Government Issue Caution Notice for Graded Exercise Therapy in ME/CFS & Post/Long-Covid
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