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ME Association
We raise funds for biomedical research into M.E. and provide support, information and advocacy for people in the UK. RTs don't always indicate agreement.
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ME Association 14h
“My daughter Merryn had Very Severe M.E. and died on 23rd May 2017, aged just 21. She spent months in hospital and was totally bedbound for the last 3 years of her illness.” Our campaign: .
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ME Association 16h
“I’m just existing in the same 4 walls every, single, day.” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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ME Association 17h
"Your body is struggling. It is not producing energy properly at a cellular level. That impacts EVERYTHING. You must be kind to it." Anna Redshaw on why the sky is *not* the limit with ME/CFS. Can you relate?
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ME Association 18h
“Birthday Summer before M.E., and after M.E.” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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ME Association May 24
Replying to @MEAssociation
If you feel the need to talk to someone, do reach out to ME Connect – the ME Association’s telephone helpline: The Samaritans are another helpful resource should you have need:
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ME Association May 24
Replying to @MEAssociation
Jennifer achieved so much for this community, campaigning, fundraising, sharing the story of her struggles and managing to raise a smile with her Screw M.E. Facebook page and social media events:
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ME Association May 24
Rest in Peace Jennifer Chittick. ME sufferer, campaigner, beloved daughter and sister. It is with much shock and sadness that we report Jennifer died on Tuesday after a ten-year battle with M.E.
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ME Association May 24
“The most painful part of M.E. is not being believed.” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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ME Association May 24
"Pacing for ME/CFS involves all of the practice and self-denial involved in mastering any kind of complex skill set. But ultimately [...] it gives me a very important (if not fragile) sense of control over my well-being."
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ME Association May 24
“... still awake after 34 hours due to pain.” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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ME Association May 24
Replying to @MEAssociation
For information and support related to smear tests and Cervical Cancer, Jo's Trust are a brilliant organisation:
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ME Association May 24
Replying to @purplegril
We really do appreciate your feedback and it's something we're giving careful thought to on an ongoing basis. In the meantime, please do look after yourself, and remember that ME Connect is here if you need a listening ear:
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ME Association May 24
Replying to @purplegril
Truly sorry to hear you're feeling low, . It's a very difficult balance to get right: when we post more uplifting content or positive stories, we're also criticised for doing so. That said, we have some really lovely content planed for the next few months! (c)
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ME Association retweeted
I am Nicola May 24
Please remember those who have lost their lives to ME. Merryn Crofts died aged 21. She donated her post mortem tissue, it showed widespread ganglionitis (inflammation of the spinal cord) and the coroner ruled her cause of death as ME. Merryn is a true inspiration.
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ME Association May 24
"...I rang my doctor straight away to make an appointment. I was told that it couldn’t be done at home, and I wasn’t given any other options.” Chronically ill women are being excluded from smear tests. Has ME/CFS prevented you from accessing screenings?
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ME Association May 24
“… I was hospitalised with severe chest pain,, muscle contractions, spasms, exhaustion and difficulty breathing, most likely in response to a wedding I attended just two days before.” Our campaign: .
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ME Association May 24
"Even though the disease is no laughing matter, sometimes bonding with your fellow ME/CFS warriors through humour can be a powerful coping mechanism. If a chuckle is what you need today, the following memes are for you."
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ME Association May 23
“Me in my usual place - the settee. Been like this for 7 years now.” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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ME Association May 23
"...despite evidence proving it is real coming to the forefront, ME remains incurable [...]. Heartbreakingly, they revealed how doctors have blamed them for wasting their time, branded them attention-seekers and told their condition doesn't exist."
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ME Association May 23
“I feel like a burden because no-one will help me…” Help us continue raising awareness and facilitating change by sharing these posts and donating to our campaign: .
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