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ME Association
Speaking up for people with ME/CFS – about 250,000 in the UK. Takes tweets directly from our website updates. RTs don't always indicate agreement.
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ME Association 11h
Replying to @MEAssociation
Just heard, the deadline for video submissions is Friday, 1st June. I know, I know, and I'm sorry it is so tight. Couldn't be helped, we were only asked late this morning. (Edited to add correct date - brain is mush!)
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ME Association 11h
They are at the top of the page, titled 'M.E. and me Broadcasts'. Same link I gave before: BBC Newsbeat is part of Radio 1.
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ME Association 12h
It lists the times when it will appear on BBC News. You can see the BBCNews name and logo along with the times. I don't know what more I can do. Have another look. For example, BBC News Tomorrow 00.30 or BBC News Tomorrow 14.30 etc. etc. with links to the BBCNews site.
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ME Association 12h
Sky One want to feature a campaign on M.E. and are asking for 20-second videos from people with the disease. Please see our blog for more information if you feel you can help. Thank you! :)
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ME Association 12h
We are delighted to announce BBC News will be featuring 'M.E. and me' throughout the bank holiday weekend, and beyond! 😀 More people will get to hear about M.E. in the UK and around the world!
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ME Association 13h
Registration is now open for the 2018 UK CFS/M.E. Research Collaborative conference, which takes place at the Future Inn in Bristol on Wednesday 19 and Thursday 20 September.
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ME Association May 24
My week on Twitter 🎉: 283 Mentions, 67.6K Mention Reach, 1.01K Likes, 573 Retweets, 66 New Followers. See yours with
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ME Association May 24
Replying to @MEActNetUK
Be interesting to match up the specific studies to those quoted funding amounts I think. If anyone has some time on their hands...
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ME Association retweeted
#MEAction Network UK May 23
Amount of money spent biomedical research in the U.K. in the year 2016-17: £130,958 Not good enough! A strategic plan is needed to ramp up biomedical research teams & funding.
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ME Association May 24
Replying to @ME_Suffolk
We are considering merits of surveys for both the scoping report and the main content consultation periods. HRMs and their use is on the list. HRMs are also in the current guideline, though feedback suggests little use made of them in clinical settings.
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ME Association retweeted
Norfolk & Suffolk ME May 23
Following the release of the NICE draft scoping document, I wonder if could consider a survey on the use of heart rate monitors to assist with pacing for people with May provide valuable evidence of the utility of HR monitoring.
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ME Association May 24
Replying to @lilmissgiggles5
You are most welcome 😀
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ME Association retweeted
M.E.L. Myalgic Encephalomyelitis Life May 23
Thank you We received our badges today & my medical awareness card. 💜
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ME Association retweeted
Dangermouse May 24
I agree, this show is really relevant, interesting and very well produced...in short, it’s quality! Thanks to 👍
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ME Association retweeted
Behind Dark Glasses May 23
WOW! is one of Hot New Releases! It’s finally happening and it’s because you all made this happen!
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ME Association retweeted
Gary Burgess May 24
Replying to @GaryBurgessCI
Oh, there’s more!
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ME Association retweeted
Gary Burgess May 24
Eek. It would appear my hubby and I are on the front page of today’s !
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ME Association retweeted
Sarah Summers May 23
I'm featured in the please follow this link to read my story and others
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ME Association retweeted
Sarah Reed May 23
Don’t miss this episode of where talks to about her role in campaigning for in parliament, the debunked trial & more!
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ME Association retweeted
#MEAction Scotland May 23
Carol Monaghan, MP, Parliamentary Questions on ME/CFS and Biomedical Research Funding | 23 May 2018
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