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ME Association
We raise funds for biomedical research into M.E. and provide support, information and advocacy for people in the UK. RTs don't always indicate agreement.
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ME Association retweeted
CII Oct 18
Please read our message () to our friends and partners in the community. We stand with you & remain committed to finding solutions for this debilitating biological disease
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ME Association Oct 19
"Our studies...confirm that patients with ME/CFS have biological abnormalities that cannot be characterized as psychosomatic." Prof. W. Ian Lipkin via Virology Blog.
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ME Association Oct 19
"Cochrane is perhaps also wisely ensuring that it's previous high standards are maintained and confidence restored in its 'evidence-based' name particularly when it comes to research into ME/CFS."
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ME Association retweeted
Tom Kindlon Oct 18
Medscape is now covering the Cochrane story "Journal to Withdraw Chronic Fatigue Review Amid Patient Activist Complaints" It would be good if some people added some comments underneath to give balance
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ME Association Oct 18
We don't have any charity places for 2019 but there's a chance in 2020. And plenty of other challenges that might appeal to those who are able to fundraise on behalf of people less fortunate.
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ME Association retweeted
ME Association Oct 18
When did it became bad practice to listen to patients and take on board what they say? and those who are against also fail to understand that the criticisms (which also come from other researchers) have validity. Even Cochrane fail to get the point.
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ME Association Oct 18
When did it became bad practice to listen to patients and take on board what they say? and those who are against also fail to understand that the criticisms (which also come from other researchers) have validity. Even Cochrane fail to get the point.
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ME Association retweeted
Dr Keith Geraghty Oct 18
An extract of the complaint made by 1 ME/CFS patient-expert to about the Laurn et al GET Review: I have to say this is polite, well-informed & insightful. Colin Blakemore wrongly decides this patient is a militant. Tragically Mr Courtney passed away this year.
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ME Association retweeted
Sheffield ME & Fibromyalgia Group Oct 17
We've had a sneak preview of Dr Charles Shepherd's PowerPoint for his keynote speech at our conference and we can't wait. Join us at 2pm tmr! Also intending to Livestream on Facebook for those unable to attend.
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ME Association retweeted
Tony Britton Oct 18
. ' woman's death was suicide not murder, inquest hears' (Beryl Taylor 70, had several conditions inc and | BBC News | 17 October 2018:
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ME Association Oct 18
Replying to @MEAssociation
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ME Association Oct 18
Replying to @MEAssociation
See also: "Scientists appalled as journal withdraws chronic fatigue study that prescribed exercise, after patient-activist complaints"
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ME Association Oct 18
Shame and don't acknowledge any genuine problems with the GET review. It's all put down to 'activist' pressure. As is the possible move of ME/CFS from its current listing under mental health in the Cochrane library.
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ME Association Oct 17
You are right and I can't count. Initially, NICE said 4 lay members but they're clearly changed their minds. Nice one NICE 😀
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ME Association retweeted
Listening Spooks 👻 Oct 17
If you get then look out for our audiobook review in this issue! ☺️☺️
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ME Association Oct 17
The Autumn Issue of ME Essential will be hitting doormats in the next few days 😀❄️ We are also launching our Xmas appeal which is aimed at raising even more funds for vital biomedical research.
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ME Association Oct 16
Would you like to help advise the CMRC? Applications are now available to join the patient advisory group.
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ME Association Oct 16
NICE publish the revised Scope, stakeholder comments and replies - and reveal some of the important committee appointments (including the 4 lay members).
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ME Association retweeted
Hannah Radenkova Oct 12
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ME Association retweeted
Pete Goodyer Oct 13
Congratulations to Crossways House on their excellent efforts and incredible team spirit in completing their in aid of Well Done to all involved
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