Twitter | Search | |
Global Genes
Leading patient advocacy organization working to eliminate the challenges of rare disease faced by 350 million people worldwide.
23,304
Tweets
7,748
Following
25,653
Followers
Tweets
Global Genes 1h
We love a little insight mixed with some comedic relief. Hear the from the !
Reply Retweet Like
Global Genes 14h
“With millions of people impacted by more than 7,000 rare diseases, our goal is to continue to fund their transformational solutions, inspiring both awareness and hope." Global Partners Raises Over $65,000 for .
Reply Retweet Like
Global Genes 23h
Livestream this week to hear outline his eight-step approach to advancing patient-centric research.
Reply Retweet Like
Global Genes Oct 19
Hear discuss the power of film and how he's using it to raise awareness for at DISORDER: The Rare Disease Film Festival.
Reply Retweet Like
Global Genes Oct 18
Our RARE Compassion Project is bridging the gap between healthcare and . Hear the first hand experience from 2019 David R. Cox Scholarship recipient Madison Lodge.
Reply Retweet Like
Global Genes retweeted
Christine White Oct 18
For will host Understanding Gene Therapy for Gaucher Disease on Oct. 29 at 7:00 p.m. ET. Join in person or via live webcast! Learn more and register here: . Sponsored by AVROBIO
Reply Retweet Like
Global Genes Oct 18
Our friends gave attendees a place to share their stories. Check out what our community had to say in the "Every Diagnosis Matters" booth.
Reply Retweet Like
Global Genes retweeted
Kristin Smedley😎Champion of Hope Oct 17
Putting the final touches on my presentation for Spoiler alert: philosophy is the through line of how I took from never heard of...to Congress... the FDA... and now global. Looking forward to sharing our extraordinary success!
Reply Retweet Like
Global Genes Oct 17
A personal journey that touches and the power of human resilience. Relive the keynote, .
Reply Retweet Like
Global Genes retweeted
Laura King Edwards Oct 17
Hey, ! I’ll be in town with for the Disorder Film Festival on 11/9. Catch our story and me at Slate 1’s At the Edge of Hope.
Reply Retweet Like
Global Genes retweeted
Bo Bigelow Oct 16
4 years ago, I was blown away by how equips RD advocates. Honored to speak at this year's conference this past September. Click for my talk, where I share my get-noticed "secret sauce," and dish about starting the rare disease film fest.
Reply Retweet Like
Global Genes Oct 16
Last chance to get $20 tickets for DISORDER: The Rare Disease Film Festival!
Reply Retweet Like
Global Genes Oct 16
Congratulations to the 2019 recipients of the 2019 David R. Cox Scholarship for RARE Compassion. We're hopeful for the future of medicine and .
Reply Retweet Like
Global Genes Oct 16
"The day in and day out care and what's going on with him is the same. However now I can say this is the gene that's causing it. Then we can target that and look into that." - Caroline Cheung-Yiu
Reply Retweet Like
Global Genes Oct 14
Reply Retweet Like
Global Genes Oct 14
Check out what resources RARE Foundation Alliance member is sharing for Global FPIES Day!
Reply Retweet Like
Global Genes Oct 14
Hear from founder and CEO Brendan Frey discuss the company's AI platform and the focus on genetic disease.
Reply Retweet Like
Global Genes Oct 13
There's still time to register for and learn from experts & .
Reply Retweet Like
Global Genes Oct 11
“This is the first time we have been able to estimate the contribution of jumping genes, known as transposons, in a large sequencing cohort of rare developmental disorders.” Jumping genes found to cause rare developmental disorders.
Reply Retweet Like
Global Genes Oct 11
Running a organization, creating an adaptive clothing line and blogging. Keisha Greaves does a little bit of everything to bring awareness to the rare disease community through her organization .
Reply Retweet Like