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Global Genes
Leading patient advocacy organization working to eliminate the challenges of rare disease faced by 400 million people worldwide.
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Global Genes Aug 2
Come check out our virtual exibitor booth at on August 8!
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Global Genes Aug 1
August is SMA Awareness month! Join us in recognizing our community and advocates like Shane Burcaw () this month.
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Global Genes Aug 1
Don't miss this - Eric Swayze talk about their new antisense therapy that could potentially treat .
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Global Genes Jul 31
“By starting with subgroups with specific genomic features, investigators are providing new hope for patients at genetic risk for this devastating fatal disease.” Read how taking a genetic approach to therapies may hold for patients.
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Global Genes Jul 30
Learn how to gather and optimize data to further your research efforts by watching session recordings from
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Global Genes Jul 30
Check out all of our Global Genes LIVE! sessions and pencil in your favorites before September. You can learn about strengthening research collaborations and ways to shorten the therapeutic odyssey.
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Global Genes Jul 29
We’re excited to partner with in a survey to understand patients' journey to a diagnosis. Contribute your story today and help shorten the diagnostic odyssey.
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Global Genes Jul 28
Due to the postponement of , the Rare Outreach Coalition launches The Disorder Channel to showcase rare disease films.
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Uplifting Athletes Jul 14
Take a break from training for the 7000 Mile Challenge and check out Part I of this weeks featuring patient, advocate, and friend to us at Uplifting Atheltes, Marni Cartelli ()!
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Global Genes Jul 27
Community Member Monday: Meet Carolina Sommer () who believes you should "never be afraid of asking questions and approaching people. Everyone's story is powerful."
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Global Genes Jul 26
. grants rare pediatric disease designation to for rare brain cancer treatment. Learn more here:
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Global Genes Jul 25
Easy listening: Hear how patients with rare lung disease are handling and learn more about an experimental therapy working to treat them.
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Global Genes Jul 24
For all of our young adults with out there!
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Global Genes Jul 24
This week in Drug Development: Read more about how approval for an at-home treatment for certain rare blood cancers can transform the lives of its patients.
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Global Genes Jul 24
This week in Drug Development: The grants a rare pediatric disease designation to treat KCNQ2 epileptic encephalopathy. You can learn more here:
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Global Genes Jul 23
Start planning your Global Genes LIVE! experience today. Use the interactive agenda to discover sessions like institutional strategies for inclusivity and fun and interactive networking.
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Global Genes Jul 23
Refresh your data gathering skills by checking out recodings from
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Global Genes Jul 22
Discover collaborative partnerships and valuable data-sharing connections by joining the RARE Foundation Alliance today!
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Global Genes Jul 21
Kick back and relax with a good book this week. Check out our favorite RARE Reads and recommendations from the community.
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Global Genes Jul 20
Carmine Therapeutics and hope to "discover, develop, & commercialize" a new gene therapy targeting 2
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