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Debbie Spencer
I make stuff, garden lots, obsessively watch cycling, am a newly formed dog addict & have a thing for hens. For fun I have Ehlers Danlos Syndrome (I'm bendy).
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Debbie Spencer Feb 16
I once had a nursery hamster for the weekend. I woke up the first morning and it was lying feet up apparently dead. Filled with horror I stared at it, all of a sudden it it flipped over and ran around. No one remembered to tell me it sleeps on it’s back.
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Debbie Spencer Feb 16
Oh wow thanks, I will be over to Ireland forthwith!
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Debbie Spencer Feb 16
Oh my goodness that looks wonderful!
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Debbie Spencer retweeted
Isabel 💛 Feb 15
I’m really fucking bored of this ‘all or nothing’ mentality people have when it comes to vegetarianism/veganism. Stop discouraging people from making any small changes they can. You’re not helping the cause by telling people it’s all or nothing - many people will choose nothing.
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Debbie Spencer Feb 12
Replying to @rxbyndavidson
I used to have the same thing when I was younger. If you can use it to spur you on & help you push forward with your aspirations you will undoubtedly achieve them. It comes from really wanting it & without that passion you will definitely not achieve what you want.
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Debbie Spencer Feb 11
Replying to @SmallholdersUK
Ooooh only just seen who you are & what you do. I am super excited.
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Debbie Spencer retweeted
SmallholdersUK Feb 10
If you fancy a week tweeting from contact me, Debbie . All smallholder related tweeters most welcome (including butchers, vets, gardeners, rural crafters, weavers, shearers, coppicers, small scale farmers…) you get the idea! UK & worldwide welcome.
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Debbie Spencer Feb 11
Replying to @JakeZackAndy
This is a brilliant photo to compare with the first one You showed of a nervous & skinny (but gorgeous) chap who wasnt sure about anything. His condition & sheer joy at his work are wonderful to see
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Debbie Spencer Feb 11
Replying to @LiamPR87
Didn’t see this last night. Also hated Stephen Hendy, loved Jimmy White. Love Ronnie now. We are sporting twins.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Any time. I am more than happy to talk to anyone who wants to understand it better.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Waste products although actually it probably does happen in the stomach too. I know it happens in veins where blood pools. My body also has to process a lot of toxins from the muscle nonsense all of which I guess is not good news for the organs.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Hmm interesting question. Lots of my problems centre around the effect of the stretch I.e. my sinuses get a bit twisted so I get a lot of sinus infections. The stretch also cases pooling of stuff in places like bladder and digestive system. So I guess it all has to work harder.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Hope so. Kinda feels like it might be a government plan to round up mutants as per a Marvel storyline. Not that I’m paranoid.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Yes it is fascinating. Very complex condition with a spectacular array of comorbidities. As for the other condition as it couldn’t be diagnosed so my genes got sent to the 100,000 genomes project which collects unusual genetic specimens and compares them to check for similarities
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Debbie Spencer Feb 10
Replying to @LiamPR87
later to check for everything else under the sun and my latest one finally decided it was ED as the hypermobility type does not yet have a known genetic marker and I don’t have the others but fit all but one aspects of the profile.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Oh you’ve got hypermobility. Cut a long story short, I also have lots of things wrong with my internal organs which are due to the stretchiness so I mostly fitted the profile of ED which turned into my unofficial diagnoses for a while. 3 geneticists
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Debbie Spencer Feb 10
Replying to @LiamPR87
ED - after years of various muscular skeletal problems from childhood, hundreds of hours in front of Drs & with physios (at least once a week for most of my childhood) I was in a hydrotherapy pool and a physio walked past, asked me to get out of the pool do a few things and said
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Debbie Spencer Feb 10
Replying to @LiamPR87
Ooh I love snooker. Grew up watching Pot Black on a Friday night with my Grandad. Not watching tonight as I have a headache which can cope with a bit of ipad but not a lot of coloured balls another coloured surface.
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Debbie Spencer Feb 10
Replying to @LiamPR87
You are more than welcome to ask questions should you ever want to, very comfortable talking to people about it. I always get asked to talk to the medical students & junior drs.
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Debbie Spencer Feb 10
Replying to @LiamPR87
Yep I have Ehlers Danlos Syndrome Hypermobility Type & something unknown which, I kid you not, was pronounced as “weird” by a panel of world experts. I am very proud of this nod to my uniqueness
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