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Cure SMA
Families, friends, and researchers working together toward the same goal: Cure SMA. Over $80M raised for research. 36 Chapters, 120,000 members & supporters!
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Cure SMA 17h
in recognition of this November: revisit the story of community members Shane and Hannah as they tackle head-on the misconceptions of what caregiving really means.
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Cure SMA Nov 13
The Conference Scholarship Application for the is now open! The first deadline for scholarship applications is on Friday, November 15th. We hope to see you all there!
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Cure SMA Nov 11
Today, announced positive data from the pivotal Part 2 SUNFISH study evaluating risdiplam in people aged 2-25 years with Type 2 or 3 (SMA).
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Cure SMA Nov 8
In addition to their determination to get the best treatment possible for Winnie, the Stanley family is committed to helping other children with , starting right in their home state of West Virginia.
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Cure SMA Nov 8
November is – a time to recognize, support, and empower our community caregivers. Self-care can be hard for rare disease caregivers, but resources are available. Check out this guide from .
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Cure SMA Nov 6
Angela Wrigglesworth is a third grade teacher living in , TX. "I know it’s expensive to hire me, but I’m worth it. Be worth it in whatever career you choose.”
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Cure SMA Nov 4
It’s the most charitable time of the year! Are you ready to get involved? Help us kick-off our Year End Campaign by making a donation.
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Cure SMA Nov 1
Members of Cure SMA’s Research Department recently presented on early diagnosis in SMA at and . Join , learn to recognize the early signs of SMA, and help us to reduce diagnostic delays. Visit
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Cure SMA Oct 31
Today, AveXis issued a community statement on the clinical hold of AVXS-101. Read more:
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Cure SMA Oct 30
Steven Verdile is a 22 year old graphic designer working in the bustling center of Times Square. Following his graduation from St. John’s University, Steven began his career at . Read more in our latest community spotlight!
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Cure SMA Oct 30
Today, released a statement on AVXS-101. Check out our news section to learn more:
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Cure SMA Oct 29
We are happy to announce the establishment of the Adult Advisory Council, a volunteer council that provides guidance, advice, and feedback to . Topics discussed will include patient care, support programs, accessibility, education and more.
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Cure SMA Oct 22
It’s not even Halloween and we're already in the holiday spirit! The Ionis and Holiday Card Art Contest is still accepting submissions from all members of the SMA community. Deadline for submissions is this Sunday, October 27!
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Cure SMA Oct 21
"The journey is valuable, but believing in your child’s talents, abilities and worth is equally valuable." - Neena Nizar via . Neena shares her perspective on growing up with a rare disease and as a parent of children with a rare disease.
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Cure SMA Oct 17
"He may not be able to say the words, but he was reading at age 5 and doing math at 6, so when you talk about office policy, lunch breaks, W-9s, or customer service, he gets it." - Jamie Sumner via ?
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SMArtMovesHCP Oct 16
strives to help parents voice their concerns to about . In honor of check out our easy to use Parent Checklists and videos that show early signs of .
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Cure SMA Oct 16
We are excited to announce that Dr. Francis Collins, Director of the , will attend the 2019 event and give this year’s keynote address. He will be joined by Walter Robb, former co-CEO of Whole Foods, and other special guests.
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Cure SMA Oct 14
Twenty Team runners braved the pouring rain on September 29th during the & 5K. Together, they successfully raised over $12,000 for Cure SMA! Interested in joining Team Cure SMA? Visit our website to learn more:
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Cure SMA Oct 11
Bringing back a holiday favorite – the and Holiday Card Art Contest! Check out the entry details and kickstart your creative juices. Deadline for submissions is Sunday, October 27!
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Cure SMA Oct 10
Congratulations to our top fundraising events for September! Interested in checking out an upcoming event in your area? Visit our events calendar:
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