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AxisAdvocacy
Our goal is to improve the lives of patients & caregivers who are living and dealing with SCD. Visit our website for more info:
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AxisAdvocacy Jun 17
This is wonderful. Having such amazing support from your State Representative is a testament to the work you are doing
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AxisAdvocacy Jun 15
Replying to @Jew_ELstar06 @lyft
Oh no. I am glad you are safe. 🌈
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AxisAdvocacy Jun 15
Reaching out and sharing is the first step to getting over it 💕
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ABC News Jun 3
"Resist Trump. Resist Racism. Resist Cruelty. Resist Hate. Resist Sexism." Protest banners are hung from London's Vauxhall Bridge to coincide with the start of Pres. Trump's three-day U.K. state visit.
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Jan Nolta, Ph.D. Jun 3
Today in our Program Shared Translational Lab Seminar Series we are very fortunate to have Dr. Suma Shankar, director of the Precision Genomics Center. Her exciting lecture is titled, “Clinical whole genome sequencing in the precision medicine era.”
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Kamala Harris Jun 2
Instead of requiring women to prove they’re being paid less than the men doing the same work, the responsibility should be on corporations to prove they’re paying everyone equally. And if they fail to do it, they will be fined.
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Sickle Cell 101 Jun 3
Happening now! We're talking about pain in disease. Ask your questions now during our Ask Dr. Q Facebook and Instagram Live event.⁣ Visit Sickle Cell 101's Facebook page right now to join and participate in the event or join through our Instagram Live event.
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Ify Osunkwo MD Jun 1
I#am reposting to confirm -Could one friend please copy and repost? I am trying to demonstrate that someone is always listening. 💚💚💚💚💚💚💚💚 It only takes one person to make a life & death difference....... Reply "Done" and RT when you've participated.
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AxisAdvocacy May 29
What great news for everyone
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Sick Cells May 20
Meet April. She is a Sickle Cell warrior with hemoglobin SS. She will be continuing this year’s photo series. Check out our social media tomorrow morning for more on her story!
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Sickle Cell 101 May 20
We have to be good mentally and emotionally to successfully withstand life's hardships.
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Sickle Cell 101 May 21
Those with depression also had higher healthcare costs compared to individuals with disease that did not have depression. The study suggests that is an important part of care for patients living with sickle cell disease. Source: S. Adams, et al.
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Lakiea Bailey, Ph.D May 21
Hey y'all. I've received a bunch of questions lately about working with the Sickle Cell Community Consortium on new and existing projects, platforms, and initiatives. All of our groups are open and...
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ASH May 17
View our benign hematology curriculum, a series of free videos designed to supplement education for fellows, with initial videos in disease and hemoglobinopathies
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AxisAdvocacy May 19
These have been amazing events for our community. Please attend one when if you have the opportunity. Show up and speak up wants to hear our voices.
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Lakiea Bailey, Ph.D May 18
I'm so glad that I was able to pop my head in and catch the last bit of this important community event focused on sharing info about clinical trials with the sickle cell community. The next one will be June...
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josefa salinas May 18
Please join me today to start this conversation! Mental Health is something we all need to talk about!
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ASH May 16
. used individualized pain plans to reduce pediatric emergency department admission rates for children with disease. If you’ve done something similar, you can present it at as a Champion
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Sickle Cell 101 May 15
If you are asked to join a clinical study be sure you receive and review an informed consent. Don’t be scared to ask for clarifications about the study and the informed consent before making a decision to join the study.
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GBT (Global Blood Therapeutics, Inc.) May 17
"I have to be 4x better to be considered half as good because I am a minority, female and sick." Dr. Bailey talks about living with disease on the 2018 Sickle Cell Disease Therapeutics Conference patient panel.
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