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TheAarskogFoundation
A patient and parent led non profit ? International Aarskog Awareness week 29th September - 4th Oct 2020
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TheAarskogFoundation retweeted
Amanda Barrell Oct 12
For five years, founder Michelle Erskine faced closed doors and disbelief as she struggled to convince someone all was not well with her son. I spoke to her about raising awareness and driving research
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TheAarskogFoundation Oct 12
Thank you for your support it was a very successful week for our families in the UK and across the world.
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TheAarskogFoundation retweeted
Genetic Alliance UK Oct 2
This week our member have been leading the way in spreading awareness for Aarskog Syndrome with their international awareness week. If you have questions and want to go give them a follow
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TheAarskogFoundation Oct 12
A lovely surprise on my return to the office this morning! Thank you & for your support in highlighting our work. Great article!👏👏
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TheAarskogFoundation Sep 30
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TheAarskogFoundation Sep 29
Christopher Robin was born with Aarskog Syndrome he spent 28 years in a home due to his misdiagnosis. ~ 29th September 1956 - 24th December 2018 ~ " He waited for me to get to the hospital, he lay his head on my shoulder and closed his eyes for the last time" 🧡
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TheAarskogFoundation Sep 29
Thank you 🤗
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TheAarskogFoundation Sep 29
Good morning friends. As we mark 50 years since the discovery of Aarskog Syndrome, we begin our awareness week looking at Aarskog & Mental Health.
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TheAarskogFoundation Sep 29
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TheAarskogFoundation retweeted
Ataxia and Me CIO 1184030 Sep 19
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TheAarskogFoundation Sep 13
What does Aarskog mean to you? follow us through our awareness week to find out more.
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TheAarskogFoundation retweeted
TheAarskogFoundation Aug 30
30 days until International Aarskog Awareness week. What does Aarskog mean to you? follow us through our awareness week to find out more.
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TheAarskogFoundation Sep 6
I have 7 new followers from USA, and more last week. See
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TheAarskogFoundation retweeted
Ataxia and Me CIO 1184030 Aug 31
Look out for 25 facts, 1 everyday during September via group International Ataxia Awareness Day 25th September ©
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TheAarskogFoundation Aug 30
30 days until International Aarskog Awareness week. What does Aarskog mean to you? follow us through our awareness week to find out more.
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TheAarskogFoundation Aug 24
International Aarskog Awareness week ***29th September - 4th October 2020*** Aarskog Syndrome - an X-linked recessive, rare genetic condition. ?
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TheAarskogFoundation Aug 24
36 days from now..
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TheAarskogFoundation retweeted
Alice Lee @alee7095 second account from Singapore Aug 22
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TheAarskogFoundation Aug 23
- thank you 🥰
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TheAarskogFoundation Aug 23
A smile for Charlie
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