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ALSofGNY
The ALS Association Greater New York Chapter. Fighting ALS on every front. Walk to Defeat ALS:
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ALSofGNY retweeted
The ALS Association Aug 26
Today we announce the release of our Principles for Urgent, Patient-Centered ALS Clinical Trials: a series of recommendations to clinical trial sponsors & regulatory bodies worldwide. You can read a blog post on these Principles here:
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ALSofGNY Jul 30
Thank you for this incredible recogniztion and for all your support in the fight against ALS!
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ALSofGNY Jul 19
Thank you for your commitment to !
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ALSofGNY Jul 11
In May, we shared Ryan Wilson's story as he began his 1,500-mile journey to raise awareness and funds for research. On 6/21 Ryan successfully pedaled all the way from New York to Florida. Congratulations to Ryan on accomplishing this incredible feat!
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ALSofGNY Jul 10
Phil Freelon, who is best known as the architect of the Smithsonian's African-American history museum in Washington, died Tuesday after a 3-year battle with ALS.
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ALSofGNY retweeted
Pat Quinn Jun 30
Great day supporting the Westchester ! We started at this walk back in the summer of 2013 & have been fighting this disease for a long time now. As far as I'm concerned, we are just getting started! So much more to do!
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ALSofGNY retweeted
NowThis Jun 12
Remember the ? It ended up raising $115 million for ALS research
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ALSofGNY Jun 11
The New Jersey Delegation had a great first meeting with ! Thank you for your time and for listening to the legislative priorities vital to the community.
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ALSofGNY Jun 11
Thank you for your longtime support of the community! We're so grateful for your leadership and all you do to champion legislation and funding to help people with ALS and to advance the search for treatments and a cure.
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ALSofGNY Jun 11
Thank you for supporting the community!
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ALSofGNY retweeted
The ALS Association Jun 9
“I challenge you, and all of us, to be better advocates. I challenge you to tell our stories. I challenge you to challenge our legislators to be advocates.” -Steve Ziegler, St. Louis, addresses the ALS Advocacy Conference
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ALSofGNY Jun 3
ICYMI: Evening Talk "Advances in ALS Research" moderated by Hemali Phatnani of with panelists Neil Thakur of , Matthew Harms of , of :
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ALSofGNY May 30
“I wanted it to be far and drastic,” Ryan said. “I want to do something extreme to prove to my aunt how much her fight means to me, and to prove to myself that anything is possible.” Good luck to Ryan on his epic bike ride from New York to Florida!
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ALSofGNY May 29
, we ask you to sign on to the Dear Colleague letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program. Contact or . Thank you for your support!
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ALSofGNY May 29
, we ask you to sign on to the Dear Colleague letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program. Contact or . Thank you for your support!
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ALSofGNY May 29
, we ask you to sign on to the Dear Colleague letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program. Contact or . Thank you for your support!
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ALSofGNY May 29
, we ask you to sign on to the Dear Colleague letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program. Contact or . Thank you for your support!
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ALSofGNY May 29
, we ask you to sign on to the Dear Colleague letter opposing the addition of noninvasive ventilators to CMS’ Competitive Bidding Program. Contact or . Thank you for your support!
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ALSofGNY retweeted
The ALS Association May 28
“There will be a cure for ALS and it won’t be in the distant future.” -Don Cleveland, Ph.D.
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ALSofGNY May 21
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